Rue, 17, has Neuromyelitis Optica, a rare autoimmune condition affecting 1 in 5 million people. It can be characterised by relapses (attacks) of the optic nerve and spinal cord, which can cause vision problems and sight loss. Rue is taking part in a clinical trial to see whether a new drug can help reduce relapses that occur in her vision. Here she shares her story:
Romeo became a patient at Great Ormond Street Hospital (GOSH) when he was just two hours old, after being born with a very rare and complex heart condition. With difficult decisions ahead, Romeo's mum, Donna shares how the GOSH Palliative Care team have supported their family.
Seven-year-old Oliver woke up one morning last year with a swollen knee which gradually got worse. His mum Michelle, who herself has rheumatoid arthritis, recognised some of his symptoms but never imagined her son would be diagnosed with a rare form of juvenile arthritis.
Once a year, in every hospital in England, Patient Led Assessments of the Care Environment (PLACE) happen. You get to rate everything from how clean the floor is to how tasty the jelly is! We are looking for patients, ex-patients and parents to inspect us on 23 October 2019.