https://www.gosh.nhs.uk/our-research/our-research-infrastructure/nihr-great-ormond-street-hospital-brc/brc-news/using-new-wearable-technology-monitor-niemann-pick-disease/
Using new wearable technology to monitor Niemann-Pick disease
22 Mar 2016, 4:15 p.m.
A smartphone app, combined with wearable technology, will allow doctors to remotely monitor patients with conditions that limit their ability to voluntarily move their muscles. The app, known as 'aparito', uses a motion-tracking writsband to record the movements of patients with ataxia, and other related ambulatory conditions.
The data from the tracker is sent via a smartphone app, where it can be combined with other information such as medication adherence and events such as falls or seizures. Healthcare professionals can have constant access to this information via the web.
Great Ormond Street BRC-researcher Professor Paul Gissen, has been working closely with aparito, and Great Ormond Street Hospital is to be the first in the UK to use this new wearable technology in clinical practice. Patients could receive fewer tests and have shorter hospital visits by using the app, which will monitor routine activity in a continuous, non-invasive way.
NHS eye gene therapy restores Saffie's sight
Saffie has had her sight restored thanks to life-changing eye gene therapy for rare blindness at GOSH
£3M study led by patient voices targets pain in inflammatory arthritis
A new £3 million research programme involving Great Ormond Street Hospital and University College London researchers aims to tackle one of the largest unmet clinical needs in inflammatory arthritis – pain reduction.
GOSH joins European health leaders to shape the future of paediatric data sharing
More than 50 clinicians, data scientists, digital health innovators and industry leaders came together in Barcelona last month to tackle one of the biggest challenges in paediatric healthcare: how to share health data safely across borders to improve care
Engineered tissue offers hope for children born with ‘missing’ food pipe
Scientists from Great Ormond Street Hospital (GOSH) and University College London (UCL) have created the first lab‑grown oesophagus - the food pipe - shown to safely replace a full section of the organ and restore normal function, including swallowing, in