Rosey's story

Rosey, 5 from London has been treated at Great Ormond Street Hospital (GOSH) since she was a baby. Rosey has a condition known as VACTERL association which is a name to describe a condition which presents a number of associated symptoms. This affects lots of her body including her heart, bowel, bladder, oesophagus, larynx and spine and she has had to have 20 operations and procedures in her short life time.

Rosey’s mum Rachel was not aware of Rosey’s condition until after she was born when Rosey’s midwife spotted an abnormality on the lower part of Rosey’s body which would affect her stomach and bowel. At just one day old Rosey had surgery to insert an emergency colostomy bag so that she was able to pass waste. She then spent ten weeks recovering in the special care baby unit where doctors could monitor her progress.

During this time doctors discovered other complications that would affect Rosey’s heart, bowel, and spine. Rosey was soon transferred to GOSH for genetic testing to help find a diagnosis for her condition. Doctors eventually diagnosed Rosey with VACTERL association, a very rare condition.

At just six months old Rosey had surgery to repair a whole in her heart caused by condition. Since then Rosey has had lots of surgeries on her bowel, bladder, and oesophagus to help her feel more comfortable.

Rosey is a familiar face on the surgical wards bringing a smile to all the staff who take care of her. Rosey and her family enjoyed taking part in Paul O’Grady’s Little Heroes. Rosey’s mum Rachel said “we’re so proud of Rosey and we love seeing her on TV”

Donna Wyan, Nurse Practitioner

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