https://www.gosh.nhs.uk/paul-ogradys-little-heroes/paul-o-grady-episode-six/roseys-story/
Rosey's story
11 Sep 2018, 1:04 p.m.
Rosey, 5 from London has been treated at Great Ormond Street Hospital (GOSH) since she was a baby. Rosey has a condition known as VACTERL association which is a name to describe a condition which presents a number of associated symptoms. This affects lots of her body including her heart, bowel, bladder, oesophagus, larynx and spine and she has had to have 20 operations and procedures in her short life time.
Coming to GOSH
Rosey’s mum Rachel was not aware of Rosey’s condition until after she was born when Rosey’s midwife spotted an abnormality on the lower part of Rosey’s body which would affect her stomach and bowel. At just one day old Rosey had surgery to insert an emergency colostomy bag so that she was able to pass waste. She then spent ten weeks recovering in the special care baby unit where doctors could monitor her progress.
During this time doctors discovered other complications that would affect Rosey’s heart, bowel, and spine. Rosey was soon transferred to GOSH for genetic testing to help find a diagnosis for her condition. Doctors eventually diagnosed Rosey with VACTERL association, a very rare condition.
At just six months old Rosey had surgery to repair a whole in her heart caused by condition. Since then Rosey has had lots of surgeries on her bowel, bladder, and oesophagus to help her feel more comfortable.
Being part of the programme
Rosey is a familiar face on the surgical wards bringing a smile to all the staff who take care of her. Rosey and her family enjoyed taking part in Paul O’Grady’s Little Heroes. Rosey’s mum Rachel said “we’re so proud of Rosey and we love seeing her on TV”
The staff who looked after Rosey
Little heroes
Toddler doing well after receiving newest gene therapy available on NHS
A toddler with a life-limiting and life-threatening rare disease is the youngest to be treated with the newest gene therapy available on the NHS at GOSH.
The summer edition of ‘The Look Inside’ is out!
As part of the Children’s Cancer Centre (CCC) showcase in June, we launched the new edition of our children’s magazine ‘The Look Inside’. Pick up your copy when you're next at the hospital!
Joe Wicks with a GOSH patient and their brother
600 children and young people from Great Ormond Street Hospital (GOSH) and University College London Hospital (UCLH) teamed up to try new sports and get active.
100 healthcare professionals walk and wheel to Parliament to demand action on air pollution
We’ve joined healthcare professionals across the UK to demand action from the Government to clean up the air we breathe.