Charities and support

There are a number of specialist charities which are available to provide support and information to patients and families affected by inherited cardiovascular diseases.

Many of these charities focus on a specific inherited heart condition or group of heart conditions. They are often able to provide written information and educational resources. Some charities provide dedicated services for children and young people. Many provide the opportunity for patients or parents to contact other families or young people affected by the same condition. Follow the links below to find out more:

Cardiomyopathy Charities

Cardiomyopathy UK

Arrhythmia Charities

Cardiac Risk in the Young


Arrhythmia Alliance

Aortopathy Charities

Marfan Trust

Cardiac Charities (covering multiple conditions)

British Heart Foundation

Charities associated with the Inherited Cardiovascular Disease Team

Max's Foundation