https://www.gosh.nhs.uk/wards-and-departments/departments/clinical-specialties/dubowitz-neuromuscular-centre-dnc/contact-dubowitz-neuromuscular-centre/
Contact the Dubowitz Neuromuscular Centre
You can contact the Dubowitz Neuromuscular Centre at Great Ormond Street Hospital in a number of ways.
General enquiries
Department of Neurosciences
Main Nurses' Home
Great Ormond Street Hospital
Great Ormond Street
London
WC1N 3JH
Telephone number: 020 7405 9200
Ways the CNS can help:
- Medical concerns
- Understanding a new diagnosis and what it means
- Support at outpatient appointments at GOSH
- Advice on talking to children and young people about their condition
- Support with managing medicines for your child’s condition
- Information about your child’s condition
- Liaising with local doctors, nurses and teachers about your child’s condition
- Support with ongoing changes in your child’s neuromuscular condition
- Co-ordinating your child’s care when several teams are involved
- Referrals to palliative care or other services
Our CNS team
- Emma Scott
- Isabella De George
- Sian Craig
- Victoria Crook – Advanced Nurse Practitioner
How to contact the CNS team
Telephone: 0207 405 9200 ext. 1195 (leave a message)
Ways social work can help:
- Support with a new diagnosis and what it may mean emotionally and practically for your child and family
- Information and signposting about your child’s condition
- Links to relevant support groups or other families in similar situations
- Support at outpatient appointments at GOSH
- Advocacy support with education, housing needs and adaptations
- Support with emotional and practical issues as your child’s neuromuscular condition changes over time
How to contact:
Telephone: 0207 405 9200 ext. 5331
- Helping your family recognise and use its strengths to work through difficulties
- Supporting you through stress, worries and difficult times
- Helping you adjust to changes in your child’s abilities, such as losing the ability to walk
- Advice on managing behaviour, for example when your child is finding it hard to express their feelings
Our family therapist Kate can meet with families when they come for outpatient appointments, talk by telephone or arrange to meet at other times.
How to contact
- Telephone: 0207 405 9200 ext. 1252
- Email: kate.waters@gosh.nhs.uk
Please note our family therapist Kate works Wednesday, Thursday and alternate Fridays.
Ways our Co-ordinators can help:
- Questions about follow-up appointments
- Questions about clinic letters
- Questions for consultants, such as test results
- Booking the Patient Hotel
- Any questions about appointments
- Booking transport
- Booking interpreters
- Questions about what will happen on the day of the appointment
Our Service Co-ordinators:
- Christian Ricot
Dr Manzur and Dr Robb
- Gundari Gombosed
Prof Muntoni and Dr Sarkozy
- Yasmin Ali
Dr Munot and Dr Baranello
How to contact our Service Co-ordinators:
- Telephone: 0207 405 9200 ext. 5849
- Monday to Friday, 9am to 5pm