Involving patients and members of the public is essential to the research we carry out at Great Ormond Street Hospital (GOSH) and the UCL Great Ormond Street Institute of Child Health (ICH).
High quality research depends on listening to the voices of children and young people, as well as their families and carers, taking account of their experiences, priorities and perspectives. This process of joint working is vital to how we design and carry out our research.
We involve and engage patients and the public in our research through:
• Involvement: We aim to actively consult, involve and listen to patients and members of the public about their views on the research carried out at the NIHR Great Ormond Street Hospital Biomedical Research Centre (BRC).
• Engagement: We aim to raise awareness of research carried out by BRC and GOSH researchers amongst patients and members of the public.
If you are interested in getting involved with research at GOSH and ICH, you can email us at email@example.com
Young Person’s Advisory Group (YPAG)
Watch YPAG members Esme, Nicke and Freya bust some myths about research at GOSH.
If you are aged between 8–21 and are interested in improving health by advising on research, then you might like to join YPAG. We meet at GOSH and provide feedback to researchers to help them carry out research which is relevant to children and young people. YPAG is part of a national network of groups called Generation R, and our London group is one of five around the country.
Parent/Carer Research Advisory Group
We’re looking for parents or carers who have a child with a health condition to help us improve research into child health.
We have recently set up a group with parents and carers to improve the quality of research. No specialist knowledge in health or research is needed as we will provide training and support to help with getting involved. Parents or carers can help us by either attending meetings or getting involved from home.
Throughout the year we organise and deliver a range of activities for patients, their families and members of the public where you can meet researchers and find out about their work. Please check our BRC events page for details of upcoming events.
See our news report from 2019, which highlights how young people assisted in research - Young people shaping healthcare technology research.