GOSH Sample Bank
GOSH Sample Bank is a new initiative that will enable patients’ leftover samples to be used for vital child health research instead of being thrown away. The samples (including urine, blood, faeces or biopsies of skin and other tissue) will allow us to carry out more research to better understand rare conditions and develop new treatments.
What is the GOSH Sample Bank?
Currently leftover samples are discarded once all the necessary tests have been carried out. For Autumn 2019, we are seeking patients’ consent to donate their samples to the sample bank. These leftover samples will have the potential to be used in a range of research projects. We won’t be asking patients to donate anything extra or undergo any extra tests.
Sample banks are particularly important for specialist hospitals like GOSH where it can be hard to get enough samples to allow researchers to study rare conditions.
It will take some time for us to build up our bank of rare disease samples, and research itself can be a slow process, so we are not expecting breakthroughs immediately. In the future we hope the GOSH Sample Bank will become an incredibly rich resource of information helping researchers answer important questions about why conditions occur and who is at risk. These answers can lead to quicker and more accurate diagnoses better treatments for children and ultimately help more children fulfil their potential.
- Watch the Sample Bank animation featuring a voiceover from 17 year old GOSH patient and Young Persons Advisory Group (YPAG) member Sandra.
- Speak to your doctors and nurses about how you can get involved in the GOSH Sample Bank
Patient information leaflets for Sample Bank
For taking part in Sample Bank, there are different information leaflets depending on your age and if your are a parent or carer.