Patient and public involvement for researchers
We strongly encourage the involvement of patients, their families and carers, as well as the public in research. We believe involving patient and the public makes our research more relevant, and can lead to treatments that better meet the needs of children and their families.
This page is aimed at researchers at Great Ormond Street Hospital (GOSH) or the UCL Great Ormond Street Institute of Child Health (ICH). If you are a patient or member of the public, please visit our page describing the advisory groups you can join.
Patient and Public Involvement (PPI) support for researchers
Through the work of National Institute for Health Research (NIHR) GOSH Biomedical Research Centre (BRC), we provide PPI support and advice to researchers including:
- One-to-one advice on involving patients and the public in your research and assistance with including and demonstrating this in grant applications
- Involvement and engagement training events for researchers to build up skills in involving the general public in the research process. In collaboration with the NIHR University College London Hospitals (UCLH) BRC we have organised a series of free, practical training workshops which are open to GOS UCL ICH staff.
- Researchers can attend our two existing research advisory groups in person or ask for written feedback on research (e.g. patient information sheets, lay summaries etc). The groups are managed and facilitated by the PPI Lead at GOSH/ICH.
Young Person's Advisory Group (YPAG)
Our group consists of young people, between 8-21 years old, who are interested in medicine, research and science. Some have health conditions and have experience of participating in clinical trials. The group meets six times a year to advise researchers on their work. Researchers who are planning to undertake health research with children and young people can make arrangements to visit YPAG to get input and advice on any element of their project.
Parent/Carer Research Advisory Group
Child health researchers looking for patient and public involvement can consult with our Parent/Carer Research Advisory Group to get support with their project. This could include advice on the research idea, study design, developing accessible information sheets and dissemination. Consultation can take place either by visiting the group or via email.
Patient/Public Engagement (PPE) in Research
We are committed to raising awareness and keeping patients and the public informed about research at GOSH. We achieve this through our engagement programme that encourages conversations between patients, the public, staff and our researchers. Prior to 2020, we ran a diverse programme of events and activities including an annual GOSH BRC Family Fun Day in the Autumn as well as activities to mark Rare Disease Day (February) and International Clinical Trials Day (May). Our current plans are to move some of these activities online, with the opportunity for an even wider audience – Do get in touch if you would like to showcase your research with us.
Get in touch
Contact our PPI lead for research at GOSH and ICH: email@example.com