Patient and Public Involvement and Engagement (PPI E) for researchers

Looking down a microscope at the BRC Open Day 2016

We strongly encourage the involvement of patients, their families and carers, as well as the public in research. We believe involving patient and the public makes our research more relevant, and can lead to treatments that better meet the needs of children and their families.

This page is aimed at researchers at Great Ormond Street Hospital (GOSH) or the UCL Great Ormond Street Institute of Child Health (ICH). If you are a patient or member of the public, please visit our page describing the advisory groups you can join.

Patient and Public Involvement (PPI) support for researchers

Through the work of the National Institute for Health Research (NIHR) GOSH Biomedical Research Centre (BRC), we provide PPI E support and advice to researchers including:

  • One-to-one advice on involving patients and the public in your research and assistance with including and demonstrating this in grant applications
  • Involvement and engagement training events for researchers to build up skills in involving the general public in the research process. In collaboration with the NIHR University College London Hospitals (UCLH) BRC we have organised a series of free, practical training workshops which are open to GOS UCL ICH staff.
  • Researchers can apply to attend our two existing research advisory groups in person or ask for written feedback on research (e.g. patient information sheets, lay summaries, research design and protocol etc). The groups are managed and facilitated by the PPI E Lead at GOSH/ICH. Please note preparation time is needed for this and feedback from the researcher on changes they will make as a result of consulting the research advisory groups.

Young Persons' Advisory Group (YPAG)

The group consists of young people, aged between 10-21 years old, who are interested in medicine, research and science. Some have health conditions and have experience of participating in clinical trials. The group meets six times a year to advise researchers on their work. Researchers who are planning to undertake health research with children and young people can make arrangements to visit YPAG to get input and advice on any element of their project.

Parent and Carer Research Advisory Group

Child health researchers looking for patient and public involvement can consult with our Parent and Carer Research Advisory Group to get support with their project. This could include advice on the research idea, study design, developing accessible information sheets and dissemination. Consultation can take place either by visiting the group (via Zoom) or via email.

Patient/Public Engagement (PPE) in Research

We are committed to raising awareness and keeping patients and the public informed about research at GOSH. We achieve this through our engagement programme that encourages conversations between patients, the public, staff and our researchers. Prior to 2020, we ran a diverse programme of events and activities including an annual GOSH BRC Family Fun Day in the Autumn as well as activities to mark Rare Disease Day (February) and International Clinical Trials Day (May). Our current plans are to move some of these activities online, with the opportunity for an even wider audience – Do get in touch if you would like to showcase your research with us.

More information

Ethics guidance on patient and public involvement in research has been published in a joint statement between the Health Research Authority and INVOLVE

Guidance on how to provide feedback to public contributors to research.

Get in touch

Contact our PPI lead for research at GOSH and ICH: research.ppi@gosh.nhs.uk