Most of the children being cared for by the Neuroimmunology team will be seen regularly in an outpatient clinic. We run a number of outpatient clinics and your doctor or nurse will explain to you which clinic your child will attend. These include:
- Demyelinating disease clinic - this clinic sees all children under the age of eighteen years of age who present with recurrent episodes of demyelination of the brain and spinal cord.
- Neuroimmunology clinic - this is a specialised clinic for children presenting with conditions where a misprogrammed immune system has resulted in the brain and spinal cord coming under attack. Commons conditions seen in this clinic include opsoclonus myoclonus, autoimmune encephalitis and immune-mediated movement disorders.
- Neuroimmunology-Rheumatology clinic - this is a multi-disciplinary specialised clinic for children with complex immune-mediated disorders affecting both the neurological system and rheumatological system. This clinic is run by doctors from neurology and rheumatology.
- Neuromyelitis optica (NMO) spectrum disorders clinic - this is a clinic where children and young people with recurrent demyelination affecting the eyes and/or spine associated with AQP4 or MOG antibody are seen in collaboration with the NMO team from Oxford hospital.
- Relapse clinic - this is a specific clinic for patients who may be experiencing a relapse of symptoms. This can only be booked by the clinical nurse specialist team following a discussion with your child's GOSH doctor and does not always replace the need for you to attend your local hospital for urgent assessment.
- Transition clinic - this is a specific clinic for patients that are near to transitioning to adult services. Many of the young people we care for will be transitioned to the National Hospital for Neurology and Neurosurgery for their continuing neurology care and this clinic allows them the the opportunity to meet with members of the adult team prior to this transition and in turn makes the process of transition a much less daunting prospect. Members of the clinical nurse specialist team at GOSH support this transition by attending the young persons first adult neurology appointment where possible.
Many of these clinics will also have psychology input allowing the children and their parents to meet with the psychologist once they have been seen by the doctor.
The Neuroimmunology centre also runs nurse led clinics which focus on discussions around treatment choices, further information regarding your child's condition or follow up once a particular treatment has been started.