We have an ongoing programme of research, and you or your child may be invited to take part in a research project whilst under the care of the team. This is always entirely voluntary, and whether you choose to participate or not, your clinical care will not be affected. Any information gathered may be used anonymously for research purposes to improve our understanding and lead to better treatments for other children and families in the future.
Clinical outcomes are measurable changes in health, function or quality of life that result from our care. Constant review of our clinical outcomes establishes standards against which to continuously improve all aspects of our practice.
The clinical academic unit of paediatric gastroenterology is a partnership across Great Ormond Street Hospital and UCL Great Ormond Street Institute of Child Health and is involved in a large spectrum of research.
The clinical team at GOSH works closely with the research department at the Behavioural and Brain Sciences Unit (BBSU) at UCL Great Ormond Street Institute of Child Health (ICH). We collaborate with colleagues around the world to try and understand the genetic, psychological and neurophysiological basis of disorders on the autism spectrum. All information we obtain in terms of interview, observation and other investigations is compiled into anonymised computerised files. From our database of nearly 2000 children, we are able to compare a child’s problems with others seen in our clinic and can look for similarities and differences. For research purposes, we usually ask parents to donate DNA samples too.
The Neuropsychology department at Great Ormond Street Hopsital is involved in a broad range of research. We are particularly interested in looking at cognitive and behavioural problems associated with various disorders and diseases of the brain.