Haemophagocytic lymphohistiocytosis (HLH) is a rare immune disorder where the body reacts inappropriately to a ‘trigger’, usually an infection. This page has been produced jointly between PID UK, Great Ormond Street Hospital (GOSH) and the Great North Children’s Hospital and in association with Histio UK.
Haemophilia affects the body’s ability to control blood clotting, which is what is used to stop bleeding. It’s an inherited bleeding disorder, so if someone has haemophilia it’s likely one of their relatives will have it as well.
Haemophilia B (also known as Factor IX deficiency) is a type of clotting disorder, much rarer than Haemophilia A (Classic Haemophilia or Factor VIII deficiency). A specific protein is missing from the blood so that injured blood vessels cannot heal in the usual way. This page from Great Ormond Street Hospital (GOSH) explains the causes, symptoms and treatment of Haemophilia B and where to get help.
Haemophilia A (also known as Classic Haemophilia or Factor VIII deficiency) is the most well-known type of clotting disorder. A specific protein is missing from the blood so that injured blood vessels cannot heal in the usual way. This page from Great Ormond Street Hospital (GOSH) explains the causes, symptoms and treatment of Haemophilia A and where to get help.
This free afternoon event aims to give an introduction for PhD students, early and mid career translational researchers in using health economic analysis. This will cover the basic principles of health economics, how you can effectively plan research and grants to include health economic analysis. This day will be supported by case studies from around UCL and London to show how this has happened in both clinical and non clinical settings.
The Zayed Centre for Research into Rare Disease in Children (ZCR) is currently under construction in Guildford Street. Importantly this will include a dedicated facility comprising seven ‘cleanrooms’ where gene and cell therapy medicinal products can be made to treat children compassionately or on a clinical trial.
Treating bleeds as soon as they happen can help them heal quickly and reduce the long-term effects on joints or muscles. This information from the Haemophilia team at Great Ormond Street Hospital (GOSH) explains what to do if you've had a bleed.
Clinical outcomes are measurable changes in health, function or quality of life that result from our care. Constant review of our clinical outcomes establishes standards against which to continuously improve all aspects of our practice.