Muenke syndrome is a type of complex craniosynostosis named after the doctor who first described it in the mid-1990s. This page from Great Ormond Street Hospital (GOSH) explains the causes, symptoms and treatment of Muenke syndrome (also known as FGFR3 associated craniosynostosis or P250arg mutation) and where to get help.
This page explains about transgastric jejunal feeding devices (also known as gastrojejunostomy or GJ devices), how they are inserted at Great Ormond Street Hospital (GOSH) and how you will need to look after it once you return home.
We asked Pete a series of questions to get a sense of his administration and clerical career path, what it's like working in a busy specialist children's hospital as an assistant services manager, his achievements and the advice Pete would pass on to others considering Great Ormond Street Hospital (GOSH) as future place of work. Read Pete's answers.
A gastrostomy is a surgical opening through the abdomen into the stomach. A feeding device is inserted through this opening. This allows your child to be fed directly into their stomach, bypassing the mouth and throat.
Each year, a number of babies and children will suffer an accident or illness severe enough to stop them breathing (respiratory arrest). In a small number of these cases, it will even stop their heart beating (cardiac arrest).