This booklet has been produced by the PID UK Medical Advisory Panel and Patient Representative Panel in conjunction with Great Ormond Street Hospital and the Great North Children’s Hospital. It provides information on immunoglobulin therapy (Ig therapy) to help answer the questions parents may have about this form of treatment for children and young people affected by primary immunodeficiency (PID).The information should not, however, replace advice from a clinical immunologist.
A gastrostomy is a feeding tube that is inserted directly into the stomach either surgically under direct vision (open or laproscopic), endoscopically (with a camera), or radiologically (x-ray guidance). A gastrostomy tube allows the delivery of supplemental nutrition and medications directly into the stomach. It also provides a mechanism to drain gastric contents if required. In order for gastrostomy feeding to be successful the child or young person must have a functioning gastrointestinal tract.
The purpose of the guideline is to provide all staff who insert and care for CVAD’s the evidence and knowledge of when to use Biopatch®, how to use Biopatch® and also to be aware of any exclusion criteria.
A new centre bringing together the country’s leading doctors and scientists to find effective treatments for children’s rare diseases has taken a significant step forward with the appointment of architects Stanton Williams.
The purpose of this document is to provide guidance for the insertion and management of Continuous Local Anaesthetic Infusion via Transversus Abdominis Plane (TAP) at Great Ormond Street Hospital (GOSH).
CLOSED: The Royal Marsden Hospital (RMH) BRC is arranging a two-day residential course, “Pathway to Independence”, on 19 and 20 November in Cambridge. The course is aimed at early career Clinical Academics interested in becoming independent researchers, in particular those that are thinking of...
A new survey from the Child Accident Prevention Trust (CAPT) has found that three in four parents (73%) with children under 5 mistakenly believe that child safety tops make medicines and toxic cleaning products child-proof.
A team of scientists led by Professor Francesco Muntoni of the UCL Institute of Child Health has won an EU grant to develop and test a novel drug treatment for boys with Duchenne muscular dystrophy (DMD).
This page from Great Ormond Street Hospital (GOSH) explains why bowel incontinence (encopresis or soiling) can occur in toilet-trained children and young people. It also gives suggestions for treatment and strategies to try at home to improve the situation.