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Idiopathic scoliosis and spinal surgery

This page from Great Ormond Street Hospital (GOSH) explains the causes and symptoms of idiopathic scoliosis (curvature of the spine from an unknown cause). Surgery to correct the curvature is the main form of treatment offered at GOSH, so this pack gives details of the assessment process to help decide if spinal surgery is right for your child. It also tells you what to expect when your child comes to GOSH.

Abilities and behaviour in Landau Kleffner Syndrome

In addition to language, children with Landau Kleffner Syndrome (LKS) often experience difficulties in other areas of development. These areas can impact on a child’s ability to learn and interact with the world around them, as well as their psychological well-being and self-esteem. This page discusses key areas of difficulty in relation to learning, motor skills and behaviour.

Helping your teenager through transition from GOSH to adult neuromuscular services

Transition is a planned process. It aims to:
  • support teenagers in the development of skills to become more independent in their healthcare
  • support parents in helping their teenager to achieve this to the best of their ability and
  • prepare for transfer from child-centred healthcare to adult healthcare services. 
This page from Great Ormond Street Hospital (GOSH) offers you some suggestions about how you might help your teenager to move through transition.

Osteogenesis imperfecta 

Osteogenesis Imperfecta (OI) is a genetic condition present from birth. Its primary feature is fractures usually caused by minimal impact. This information sheet from Great Ormond Street Hospital (GOSH) describes osteogenesis imperfecta (OI), what causes it and how it can be managed. It also tells you about the highly specialised service for OI based at GOSH.

Ambrisentan

Ambrisentan belongs to a group of medicines called ‘endothelin receptor antagonists’. It is prescribed at Great Ormond Street Hospital (GOSH) to treat pulmonary hypertension (high blood pressure in the blood vessels in the lungs).

Myelomeningocele

Myelomeningocele is a type of spina bifida. This is when the neural tube has failed to close and the neural tissue is exposed on the baby’s back. The myelomeningocele will look like a sac sticking out from a baby’s back. 

Lung transplant

This information from Great Ormond Street Hospital (GOSH) is for parents of children and young people undergoing assessment for possible lung or heart-lung transplantation. A transplant is a serious operation and is not without risk. A transplant can be the only effective treatment option for certain serious lung diseases; however, it is not a cure. In many situations transplantation can lead to an extension of life with improved quality.