This page from Great Ormond Street Hospital (GOSH) explains the causes and symptoms of idiopathic scoliosis (curvature of the spine from an unknown cause). Surgery to correct the curvature is the main form of treatment offered at GOSH, so this pack gives details of the assessment process to help decide if spinal surgery is right for your child. It also tells you what to expect when your child comes to GOSH.
In addition to language, children with Landau Kleffner Syndrome (LKS) often experience difficulties in other areas of development. These areas can impact on a child’s ability to learn and interact with the world around them, as well as their psychological well-being and self-esteem. This page discusses key areas of difficulty in relation to learning, motor skills and behaviour.
This section explains about Growing Up, Gaining Independence, a framework we use at Great Ormond Street Hospital (GOSH) to encourage and support young people to become as independent as they can with their healthcare.
Landau Kleffner Syndrome (LKS) may be associated with complex language, and additional learning and behaviour difficulties. Children and young people with LKS will benefit from a school placement that can support their individual pattern of abilities and needs.
Osteogenesis Imperfecta (OI) is a genetic condition present from birth. Its primary feature is fractures usually caused by minimal impact. This information sheet from Great Ormond Street Hospital (GOSH) describes osteogenesis imperfecta (OI), what causes it and how it can be managed. It also tells you about the highly specialised service for OI based at GOSH.
Clinical outcomes are measurable changes in health, function or quality of life that result from our care. Constant review of our clinical outcomes establishes standards against which to continuously improve all aspects of our practice.
Ambrisentan belongs to a group of medicines called ‘endothelin receptor antagonists’. It is prescribed at Great Ormond Street Hospital (GOSH) to treat pulmonary hypertension (high blood pressure in the blood vessels in the lungs).
Eight-year-old Jude was born with spina bifida, a birth defect where the spinal cord and surrounding vertebrae haven’t formed properly, causing a gap in the spine. His mum, Nadine, tells us about her experience.
Myelomeningocele is a type of spina bifida. This is when the neural tube has failed to close and the neural tissue is exposed on the baby’s back. The myelomeningocele will look like a sac sticking out from a baby’s back.
This information from Great Ormond Street Hospital (GOSH) is for parents of children and young people undergoing assessment for possible lung or heart-lung transplantation. A transplant is a serious operation and is not without risk. A transplant can be the only effective treatment option for certain serious lung diseases; however, it is not a cure. In many situations transplantation can lead to an extension of life with improved quality.