Meet 17-year-old patient Sandra, voice of our new Sample Bank animation! In this article, Sandra explains the importance of Sample Bank and her involvement with the Young Persons Advisory Group for research (YPAG).
The Zayed Centre for Research into Rare Disease in Children opened its doors to the local community in September. Almost 700 members of the public visited this inspirational building during the 'Together Festival' to take part in three days of creative collaboration.
The Together Festival on the 19 – 21 September, will present a series of workshops, tours, talks and performances that are open to all patients, families, staff and local residents. From fun family-friendly activities, to film screenings and contemporary dance, there is something for everyone.
Generalised lymphatic anomaly (GLA) – previously known as lymphangiomatosis – is the name given to a rare, congenital (present at birth), and progressive disorder of lymphatic channels which can affect different organs including the bones and the intestines. It can cause problems if the abnormal lymphatic tissue develops within important tissues and structures. This information sheet from Great Ormond Street Hospital (GOSH) explains the causes, symptoms and treatment of generalised lymphatic anomalies (GLA) and where to get help.