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Adrenaline provocation test

An adrenaline provocation test is carried out to diagnose two conditions. One called Long QT syndrome the other CPVT (Catecholeminergic Polymorphic Ventricular Tachycardia). This information sheet explains about adrenaline provocation tests, what is involved and what to expect when your child comes to Great Ormond Street Hospital (GOSH) for the test.

FAQs

You probably have lots of questions about the hospital school, what happens here and how you will be taught. That's why we've put together a list of our most frequently asked questions, which we hope you find useful. If you have another question that's not answered below, you can ...

Epidermolysis bullosa simplex: localised and generalised types

This page from Great Ormond Street Hospital (GOSH) explains about the localised and generalised forms of epidermolysis bullosa simplex and how they can be treated. It also contains suggestions for making everyday life more comfortable. The localised form was previously known as Weber Cockayne epidermolysis bullosa simplex and the generalised form Köbner epidermolysis bullosa simplex.

Adjusting to life as lockdown eases: information for families

This year, 2020, will certainly be remembered as one of the strangest years any of us will experience in our lifetimes. Dealing with worry about coronavirus (COVID-19), concerns for family and friends, issues with money and work, as well as the practicalities of several months staying at home, has been hard for lots of us.

However, when lockdown is easing and we can start to leave our homes again, go back to school and work, start meeting family and friends albeit at a distance, our worries can change and we may feel just as nervous as before.  It can be difficult to cope with the ‘outside world’ and various rules about what we can do and where, as well as not knowing when rules might change again. This can be particularly hard for children and young people so the Patient Experience team has compiled this information to help everyone adjust to the ‘new normal’.

DMSA scan

This page from Great Ormond Street Hospital (GOSH) explains about the DMSA scan used to look at your child’s kidneys, what is involved and what to expect when your child comes to Great Ormond Street Hospital (GOSH) for the scan.

Thiotepa

This page explains what thiotepa is, how it is given and some of the possible side effects. Each person reacts differently to medicines, so your child will not necessarily suffer from every side effect mentioned. If you have any questions or concerns, please speak to your doctor, nurse or pharmacist. 

Pete Sweeney, Assistant Services Manager, for Neurology, Epilepsy and Neurophysiology

We asked Pete a series of questions to get a sense of his administration and clerical career path, what it's like working in a busy specialist children's hospital as an assistant services manager, his achievements and the advice Pete would pass on to others considering Great Ormond Street Hospital (GOSH) as future place of work. Read Pete's answers.

Warfarin

Warfarin is an anticoagulant medication (known as a ‘blood thinner’) that will slow down blood clotting to prevent abnormal blood clots from developing or worsening. This page from Great Ormond Street Hospital (GOSH) explains about the anticoagulant (blood thinner) medication warfarin, how it should be taken and how it will be monitored. 

Bone SPECT/CT scans

This information sheet from Great Ormond Street Hospital (GOSH) explains about bone scans, how it is used to look at your child’s bones, what is involved and what to expect when your child comes to Great Ormond Street Hospital (GOSH) for the scan.

Tuberculosis (TB) medicines

TB disease is treated using a combination of medicines, which must be taken for six to nine months or sometimes longer if the TB is in a part of the body which is difficult to treat or if the TB is in a hard to treat form (resistant). This page from Great Ormond Street Hospital (GOSH) explains about the medicines used to treat and prevent TB and gives some important hints about making sure they are effective.