This information sheet explains the first phase of the assessment process to diagnose lower gastrointestinal dysmotility problems and what to expect when your child comes to Great Ormond Street Hospital (GOSH) for assessment.
February is LGBT History Month – a month of looking back at the history of gay rights and related civil rights movements – celebrating how far we have come in the fight for equality. For allies, it’s a chance to better understand the struggles that LGBT+ people face and how to better support them.
You may already have seen members of the craniofacial team but often we ask for a more detailed assessment to plan treatment now and in the future. This craniofacial assessment takes place over two to three days and involves other members of the multidisciplinary craniofacial team. This page from Great Ormond Street Hospital (GOSH) explains the series of appointments that make up the craniofacial assessment process.
At its recent launch, the GOSH Black, Asian and Minority Ethnic (BAME) Forum, supported by its Executive Sponsor and Chief Nurse Alison Robertson, announced its intention to support the best interests of BAME members and help the Trust in playing its part in building a sustainable, better future for all.
This page from Great Ormond Street Hospital (GOSH) explains about junctional epidermolysis bullosa with pyloric atresia and how it can be managed. It also contains suggestions for making everyday life more comfortable and contact details for a support organisation.
This service provides specialist expertise in the assessment and management of children with complex neurodevelopmental disorders. This page from Great Ormond Street Hospital (GOSH) describes the Neurodevelopmental Assessment Clinic and what to expect when you bring your child to a clinic appointment.
This information sheet from Great Ormond Street Hospital (GOSH) explains about generalised severe junctional epidermolysis bullosa (previously called Herlitz junctional EB) and how it can be managed. It also contains suggestions for making everyday life more comfortable and contact details for further information and support.
An adrenaline provocation test is carried out to diagnose two conditions. One called Long QT syndrome the other CPVT (Catecholeminergic Polymorphic Ventricular Tachycardia). This information sheet explains about adrenaline provocation tests, what is involved and what to expect when your child comes to Great Ormond Street Hospital (GOSH) for the test.
Epidermolysis bullosa (EB) is the term used to describe a number of rare genetic conditions which cause the skin to blister and shear in response to minimal friction and trauma. There are four broad categories of EB: EB simplex, junctional EB, dystrophic EB and Kindler syndrome. Within each of these categories there are several subtypes. One of the subtypes of EB simplex is the generalised severe type (previously known as Dowling Meara type).