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Coronavirus (COVID-19) and vulnerable children and young people: information for families

You might have recently received a letter from the Government advising you to either isolate or ‘shield’ your immunocompromised or vulnerable child to keep them safe from coronavirus (COVID-19) infection. We understand that this can cause a great deal of anxiety, and so are writing to clarify what this means for your child and your family.

Idiopathic scoliosis and spinal surgery

This page from Great Ormond Street Hospital (GOSH) explains the causes and symptoms of idiopathic scoliosis (curvature of the spine from an unknown cause). Surgery to correct the curvature is the main form of treatment offered at GOSH, so this pack gives details of the assessment process to help decide if spinal surgery is right for your child. It also tells you what to expect when your child comes to GOSH.

INSPIRE-CF

Adding to a long list of pioneering initiatives and as a result of the success of our frequent flyer programme, the Great Ormond Street Hospital (GOSH) Cystic Fibrosis (CF) Unit has set up an exciting new exercise. What is it and how might it make a difference? 

Augmentative Communication Service

The Augmentative Communication Service provides specialised assessment for complex augmentative and alternative communication (AAC) systems. The service has been identified by NHS England as one of 13 services nationwide offering this service. This will include assessments for devices, provision of equipment and training, maintenance and support.

Immunoglobulin therapy

This booklet has been produced by the PID UK Medical Advisory Panel and Patient Representative Panel in conjunction with Great Ormond Street Hospital and the Great North Children’s Hospital. It provides information on immunoglobulin therapy (Ig therapy) to help answer the questions parents may have about this form of treatment for children and young people affected by primary immunodeficiency (PID).The information should not, however, replace advice from a clinical immunologist.

Severe combined immunodeficiency (SCID)

This booklet has been produced jointly between PID UK, Great Ormond Street Hospital (GOSH) and the Great North Children’s Hospital. The information has been reviewed by the PID UK Medical Advisory Panel and Patient Representative Panel and by families affected by PID. It is designed to help answer the questions families may have about the immune condition called severe combined immunodeficiency (SCID) but should not replace advice from a clinical immunologist.

Ambrisentan

Ambrisentan belongs to a group of medicines called ‘endothelin receptor antagonists’. It is prescribed at Great Ormond Street Hospital (GOSH) to treat pulmonary hypertension (high blood pressure in the blood vessels in the lungs).

Gastrostomy care

A gastrostomy is a surgical opening through the skin of the abdomen to the stomach. A feeding device is put into this opening so that feed can be delivered directly into the stomach bypassing the mouth and throat. This page from Great Ormond Street Hospital (GOSH) describes the operation to create a gastrostomy and explains the care it will need afterwards.