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Transition from paediatric craniofacial services to adult craniofacial services

Transition is a planned process. It aims to:
  • Prepare the young person for adult services
  • Ensure that when that transfer happens it is a smooth and staged process
  • Involve the young person in decisions about their care and move to adult services
This page aims to offer some suggestions for young people and their parents about how you as a family might be helped through this process. 

Central venous access devices for children with lysosomal storage disorders

This page from Great Ormond Street Hospital (GOSH) explains about central venous access devices, particularly for children with lysosomal storage disorders. Some lysosomal storage disorders can be treated with enzyme replacement therapy. This needs to be given directly into the blood stream. To do this, we will put a central venous access device into one of your child’s veins. This gives easy access to your child’s bloodstream so that your child can have enzyme replacement therapy.

Video capsule endoscopy 

A video capsule endoscopy is a test to look at the inside small intestine (also known as the small bowel) for to identify and diagnose any abnormalities. This page from Great Ormond Street Hospital (GOSH) explains about the Video Capsule Endoscopy (VCE) procedure, what it involves and what to expect when your child comes to GOSH for the test.

Spinal surgery at GOSH

At Great Ormond Street Hospital (GOSH), we have developed a pathway for children and young people having spinal surgery. Spinal surgery is a complex procedure, so we want you to understand the benefits and risks of the operation so you can make an informed decision about whether to go ahead. This page explains what will happen from your child’s initial clinic appointment through to discharge, which clinicians you may meet and what to expect.

Idiopathic scoliosis and spinal surgery

This page from Great Ormond Street Hospital (GOSH) explains the causes and symptoms of idiopathic scoliosis (curvature of the spine from an unknown cause). Surgery to correct the curvature is the main form of treatment offered at GOSH, so this pack gives details of the assessment process to help decide if spinal surgery is right for your child. It also tells you what to expect when your child comes to GOSH.