‘Zayed Centre for Research into Rare Disease in Children’ to be the first of its kind in the world
September 28, 2015 – The world’s first purpose built centre dedicated to paediatric research into rare diseases has today been named the ‘Zayed Centre for Research into Rare Disease in Children’. The Zayed Centre for Research is a partnership between Great Ormond Street Hospital, University College London and the Great Ormond Street Hospital Children’s Charity. It will bring hundreds of clinicians and researchers together under one roof to drive forward new treatments and cures for children with rare diseases
In Kiev, Ukraine, the Okhmadyt hospital has many similarities with Great Ormond Street Hospital. Care is free at the point of delivery, it’s the largest children’s hospital and centre for paediatric care in the country, it’s well established, having been set up in the 1930s, and it provides a high level of care for children with cancer.
Nobody likes to wait. We understand the frustration that waiting can cause. Transformation seeks to identify the causes of delays. We aim to fix the system, not the symptom. This can involve a fundamental redesign and a change in culture. We’re always looking at ways to make sure you get the right treatment at the right time from the right team.
Promising findings from a trial for a new stem-cell based therapy for a rare skin condition have been published in the Journal of Investigative Dermatology. The study, which involved intravenous injections of stem-cells, has led to an improvement in the quality of life for the subjects and their carers.
An MRI (magnetic resonance imaging) scan uses a magnetic field rather than X-rays to take pictures of your child’s body. The MRI scanner is a hollow machine with a tube running horizontally through its middle. ‘Feed and wrap’ is a technique used with young babies instead of sedation or general anaesthesia. Generally, babies tend to fall asleep after a feed, so we take advantage of this and scan them while asleep.
After finishing her GCSEs in mid-June, Young People’s Forum (YPF) member Annabel came to Great Ormond Street Hospital Children’s Charity for a work experience placement with the Digital team. Here, Annabel tells us what she got up to.
Giving the drug sodium thiosulphate after chemotherapy reduces hearing loss in children treated for liver cancer, according to findings published in the New England Journal of Medicine today (Wednesday).
Kaposiform haemangioendothelioma (KHE) is a rare vascular (blood vessel) growth that may involve the skin and/or internal organs. It usually appears at birth or soon afterwards and in the early stages can be confused with other types of birthmark, such as an infantile haemangioma (also known as a haemangioma of infancy). Although it may be referred to as a tumour, it is not cancerous and does not spread to other parts of the body.
Pharmacy is defined as the study of medicines. It involves studying how medicines are discovered, developed and made. It also covers how medicines work in the body to prevent or treat disease, and how active ingredients can be made in to medicines.