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Helping your child get used to their hearing aid or cochlear implant

It can be challenging for some parents and carers of deaf and hearing-impaired children and young people, especially those with additional and complex needs, to get them to accept their hearing devices. This includes behind-the-ear hearing aids, bone anchored hearing aids and cochlear implants.

This is often due to sensory sensitivity – that is not liking the feeling of having anything on their head such as a hat or hair clip, or wanting anything touching their head and hair, for instance, brushing or washing. This sensitivity can affect how they cope with hearing devices so they become anxious and even ‘fearful’ of them.

This information sheet from the Audiology team at Great Ormond Street Hospital (GOSH) explains how you can help your child to manage sensory sensitivity so wearing hearing devices becomes easier with time.

Separating conjoined twins Yiḡit and Derman

Brothers Yiḡit and Derman were just 17 months old when they were brought to Great Ormond Street Hospital (GOSH). Born craniopagus, meaning conjoined at the head, their incredibly rare condition required the unique facilities and expertise of GOSH - one of the only sites in the world able to separate and care for craniopagus twins. Hear from just some of the multi-disciplinary team who were involved in their care:

Helping young children cope with hospital

Hospitals can be strange places for young children. On a visit to hospital, they will encounter lots of different people in an unfamiliar environment. There will be many new things to see, hear and smell and there may be lots of waiting. Along with the general disruption this brings to the normal routine, all these things can make hospital visits stressful or overwhelming for young children and their families.

This page from Great Ormond Street Hospital (GOSH) aims to give you some reassurance and a few ideas for how you could approach them. All these suggestions come from our play team, who between them have many years of experience working with children, young people and families in hospital. If you have any particular tips or methods that have worked for you, please contact us to tell us about them.

Fluorescein angiography of the eyes

We have blood vessels in every part of our bodies, including our eyes. Angiography is a way of taking a picture of the blood vessels and fluorescein is a dye that makes the blood vessels more obvious. The pictures let the doctors confirm or rule out certain eye conditions or monitor eye treatment. There are several different types of angiography but this page from Great Ormond Street Hospital (GOSH) is only about fluorescein angiography of the eyes.

Bromide for epilepsy

Bromide is a type of medication used to treat severe epilepsy, particularly causing myoclonic seizures. Bromide comes in two formulations: triple bromide (contains three different variations of bromide: ammonium bromide, potassium bromide and sodium bromide) and potassium bromide. The precise way it works to help epilepsy is unclear but it has been used safely for over 150 years. This page from Great Ormond Street Hospital (GOSH) explains about bromide, how it is given and some of its possible side effects.

Visiting GOSH for an outpatient appointment during the coronavirus (COVID-19) pandemic

We understand that you might be worried about coronavirus – also known as COVID-19. This information sheet from the Outpatient Department explains what to expect when you come to an appointment. Please read this alongside our general FAQs for families at gosh.nhs.uk/covid-19-FAQ. You can also find the latest news, information and resources in our COVID-19 information hub at gosh.nhs.uk/coronavirus-hub.

Nasal nitric oxide test

Inside the nose and sinuses there are tiny hairs called cilia. The cilia beat back and forth to catch dust particles and remove mucus. In some people, these cilia may not work properly, which will lead to respiratory symptoms such as coughing or difficulty breathing. This page from Great Ormond Street Hospital (GOSH) describes what to expect when your child has a nasal nitric oxide (nNO) test.

Sodium channel myotonia (paramyotonia congenita)

Myotonia is muscle stiffness that develops when the muscles do not relax after being squeezed. In myotonia, this stiffness may wear off after the muscles are exercised or ‘warmed up’. However, if paramyotonia congenital, muscle stiffness is brought on by exercise. This is the opposite of the ‘warm up’ effect so is called ‘paradoxical’ or ‘paramyotonia’. This page from Great Ormond Street Hospital (GOSH) explains about the symptoms and causes of paramyotonia congenital (also known as sodium channel myotonia) and how it can be managed.

MRes/PhD project proposal opportunity - UKRI CDT in AI enabled Healthcare

CLOSED: This is a call for any translational projects that will involve the use of artificial intelligence (AI) to solve improving the health of children with rare or complex diseases (e.g. using AI for any aspect of the development of new treatments, biomarkers, diagnostics or imaging).

Internal GOSH and ICH applicants only