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Supporting families beyond medical diagnosis

Meet Paula Thomas, Eye clinic liaison officer (ECLO) at Great Ormond Street Hospital (GOSH). Paula explains her role in providing non-medical advice to help families to learn and support their children with their visual impairment. Paula supports patient Rue, featuring in episode five of Paul O’Grady’s Little Heroes, series 2. 

Understanding Palliative Care with Finella Craig

Dr Finella Craig, Paediatric Palliative Care Consultant at Great Ormond Street Hospital (GOSH) provides care for patient Romeo, who has a congenital heart defect. Dr Craig explains why she finds Romeo so endearing, why the unique role her and her team perform is so rewarding and why the choices her team provides are so important to the patient and family. 

Rue's story: Getting involved in research

Rue, 17, has Neuromyelitis Optica, a rare autoimmune condition affecting 1 in 5 million people. It can be characterised by relapses (attacks) of the optic nerve and spinal cord, which can cause vision problems and sight loss. Rue is taking part in a clinical trial to see whether a new drug can help reduce relapses that occur in her vision. Here she shares her story:

Cora’s story: Developing resilience

Cora, aged six, received injections of botox as part of a research study at GOSH. Most people will have heard of botox (or botulinum toxin to give it its proper name) as a cosmetic procedure but did you know that it can also be used to reduce muscle stiffness for children with cerebral palsy? Cora’s mum Poonam explains more: 

Treating George’s Capillary Vascular Malformation

During Paul O’Grady’s Little Heroes, we’re shining a spotlight on the inspiring staff across the hospital who help children get better and fulfil their potential. Samira Syed is a senior Associate Specialist in paediatrics dermatology and has been at Great Ormond Street Hospital (GOSH) for a grand twenty-five years! She features in episode 4, treating patient George. 

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