https://www.gosh.nhs.uk/patients-and-families/your-care/teen-space/specialities-and-teams/endocrinology/
Endocrinology - information for teenagers
Your Endocrinology team at Great Ormond Street Hospital (GOSH) are here to support you as you get older and prepare for the next stages of your care.
The Endocrinology team looks after young people with lots of different hormone and bone conditions.
Below are resources created by our Endocrinology team
Metabolic bone conditions
Moving to adult care video
Moving to adult care is a normal part of getting older. When you’ve graduated from GOSH, your care will continue with the adult team at the Royal National Orthopaedic Hospital (RNOH) who specialise in looking after adults with your condition.
To support this next step, we have created a short video to help explain what to expect when your care moves to adult services at the Royal National Orthopaedic Hospital (RNOH).
The video was co-produced with young people and staff from GOSH and the RNOH The video is guided by Kyrio and Maryam, two young people who take you through their experience of moving from GOSH to the RNOH .
They show you what it’s like to:
- move from GOSH to RNOH
- attend your first adult appointment
- meet members of the adult team
You’ll also hear from staff at both GOSH and the RNOH, who explain the services available and how your care will continue as you get older. The video is designed to be as honest and practical as possible, to help you feel more familiar and confident before your first adult appointment.
Watch the video to learn more about your move to adult care at the RNOH.
Resources for specific endocrine conditions
The links below take you to trusted websites with information and tools for specific endocrine conditions. Some resources are about preparing for adult care, while others can help you learn more about your condition, managing your health, and planning for the future.
Differences in sex development (DSD)
- DSD Teens website - information and support for teenagers with differences in sex development.
Turner syndrome
- Turner Syndrome Support Society factsheets - Information about living with Turner syndrome, including topics such as heart health, driving and general wellbeing.
Primary adrenal insufficiency
- Addison's Disease Self-Help Group - tips and information to help young people understand and manage primary adrenal insufficiency.
Hypopituitarism
- Endocrine Society: transition self-assessment tool - checklist to help young people think about their worries, confidence, medicines, appointments and preparation for moving to adult endocrinology care.
- Pituitary Foundation: living with hypopituitarism for teens- information for teenagers about hypopituitarism and how it can affect everyday life.
- Pituitary Foundation: living with diabetes insipidus for teens - information for teenagers about diabetes insipidus and managing symptoms.
Thyroid disease
- British Thyroid Foundation: teenagers and young people - information and support for teenagers and young people living with thyroid conditions.
Diabetes
- DigiBete - information for teenagers living with diabetes, including videos and resources to support day-to-day management.
X-linked hypophosphataemia (XLH)
- XLH Network Transition Toolkit - toolkit to help young people with XLH prepare for adult care.
Contacting your Endocrine team
As you get older, your Endocrine team will support you to become more involved in your healthcare.
You might want to ask them about something you discussed in clinic, something you are unsure about, or anything you would like to understand better.
You can contact your endocrine team directly using MyGOSH.
From age 12, you may be able to have your own MyGOSH account, depending on what is right for you and your care. Having an account can help you start asking questions directly and become more confident managing your healthcare.
If you would like a MyGOSH account, please speak to your Endocrine team. They can talk this through with you and help decide what is right for you.
MyGOSH messaging is for non-urgent questions only. If something feels urgent or worrying, please speak to your healthcare team directly, your GP, NHS 111, or emergency services.
Other ways to contact your Endocrine team
If you are unable to use MyGOSH, you can email the Endocrine team.
Email: Endocrine.CNS@gosh.nhs.uk
Find out more
Or you can head back to our Teen Space to explore more support and information for young people at GOSH.