https://www.gosh.nhs.uk/our-research/our-research-infrastructure/nihr-great-ormond-street-hospital-brc/ppi-researchers/children-and-young-people-ppie-national-collaborative/
Children and Young People PPIE National Collaborative
The Children and Young People (CYP) Patient and Public Involvement and Engagement (PPIE) National Collaborative is a cross-disciplinary initiative dedicated to advancing meaningful participation of CYP in research across the UK.
Uniting cross-disciplinary researchers, practitioners, and stakeholders to collaboratively tackle unique challenges related to involving children and young people and their families in research.
Exploring challenges and solutions for engaging diverse groups of CYP in Patient and Public Involvement and Engagement.
Time and accessibility
Involving CYP requires careful planning and being flexible with timing. It's also about creating welcoming spaces where everyone feels included.
Recruitment and diversity
Involving CYP in health and care research starts with trust and making sure everyone feels included. That means learning about different backgrounds through diversity training, reaching out to communities, sharing opportunities clearly, and building strong, lasting connections.
Ethics and safeguarding
To keep CYP safe, it's important to have expert advice, clear guidelines, and plans that manage risks. Working together to create these strategies makes them stronger and more meaningful.
Resources and funding
To truly involve CYP in health and care research, it's important to have enough funding and the right resources. That includes bringing in experts who understand how to work with CYP and valuing the skills it takes to do it well.
Digital barriers
Making sure CYP can join in health and care research means giving them access to the right digital tools. That includes funding for devices, using formats that work well on phones, and helping build confidence with technology.
Structural support
To make CYP truly part of health and care research, it helps when organisations make this part of their everyday culture. Having shared resources, learning from each other, and showing the real impact of involvement, beyond just numbers can make a big difference.
Communication
Good communication with CYP means using clear, simple language, choosing fun and engaging ways to connect, asking questions to understand what they need, and making sure everyone feels included in the conversation.
Further resources
Children and Young People PPIE National Collaborative 2023-2025 report (1.1 MB)
Children and Young People PPIE National Collaborative 2nd National Meeting Report June 2025 (4.3 MB)