Jelena Stojanovic is a Consultant Paediatric Nephrologist, meaning that she is dedicated to improving the care of children with renal disease and related conditions. Her specialisms include transplantation, liver and kidney conditions and renovascular hypertension. Here she shares how she planned treatment for Noah's Alagille syndrome, who appears on Paul O'Grady's Little Heroes.
“It was a big decision to decide to get involved with the programme because we’re sharing our lives, but it’s so important to me that everyone realises these little button batteries are all round us, often in places you’d never expect. It’s vital people have more awareness to help protect their children against the dangers of swallowing them.”
Six-year old Noah has a rare genetic condition called Alagille Syndrome, which affects around one in 100,000 children from birth. It affects lots of different parts of the body, including the heart and liver, but the biggest concern for Noah is how the condition is impacting his kidneys. His mum Gemma shares their story.
Joe, aged 15, who features on Paul O’Grady’s Little Heroes, is being treated at GOSH for Marfan Syndrome, a genetic disorder that affects the body’s connective tissue, which plays an important role in helping the body grow and develop properly. Joe has an associated heart condition and required surgery to replace his aorta, the body’s main artery.
The medical and research team involved in his care share how they have used pioneering 3D Heart Modelling and Virtual Reality to aid understanding of his heart condition ahead of surgery.
How important a role does physiotherapy play in a patient's treatment? We spoke to Sue Maillard, Specialist Physiotherapist at GOSH, who has been providing physiotherapy to patient Lola who features in Paul O’Grady’s Little Heroes and has severe juvenile dermatomyositis (JDM).