Dr Finella Craig, Paediatric Palliative Care Consultant at Great Ormond Street Hospital (GOSH) provides care for patient Romeo, who has a congenital heart defect. Dr Craig explains why she finds Romeo so endearing, why the unique role her and her team perform is so rewarding and why the choices her team provides are so important to the patient and family.
Meet Michael Stylianou, Senior Operating Department Practitioner (SODP). By helping manage and understand their procedural anxiety, Michael supports children and families at GOSH in recognising, recording and responding to procedural anxiety.
“I didn’t know there was a service where Noah could get support to manage his anxiety before surgery. Noah wanted to know everything that was going to happen and he was able to ask all of the questions he had. Afterwards, he felt much more in control. He really needed that.”
Rue, 17, has Neuromyelitis Optica, a rare autoimmune condition affecting 1 in 5 million people. It can be characterised by relapses (attacks) of the optic nerve and spinal cord, which can cause vision problems and sight loss. Rue is taking part in a clinical trial to see whether a new drug can help reduce relapses that occur in her vision. Here she shares her story:
Romeo became a patient at Great Ormond Street Hospital (GOSH) when he was just two hours old, after being born with a very rare and complex heart condition. With difficult decisions ahead, Romeo's mum, Donna shares how the GOSH Palliative Care team have supported their family.