Further information and support
Headlines – the Craniofacial Support Group – is the main support organisation in the UK for families of children and young people affected by a craniofacial disorder.
REACH (The Association for Children with Hand or Arm Deficiency) can offer information and support. Call their helpline on 0845 1306 225 or visit their website
Changing Faces is another organisation that will be able to offer help and support to anyone living with a condition that affects their appearance. Visit their website or telephone their helpline on 0845 4500 275.