Further information and support
There is no dedicated support group for tufting enteropathy but the umbrella organisation Contact (previously Contact a Family) may be able to put you in touch with another family affected by the same or similar condition. Call them on 0808 808 3555 or visit their website at www.contact.org.uk
PINNT (Patients on Intravenous and Naso-gastric Nutrition Therapy) is the support group for anyone using TPN. Call them on 01202 481 625 (9.30am - 4.30pm, answerphone at other times) or visit their website at www.pinnt.com.