Real stories

Hear from patients and their families as they share their experiences of coming to Great Ormond Street Hospital.

My son’s juvenile dermatomyositis diagnosis journey

In March 2013, eight-year-old Sam developed a rash and virus. After a few days it didn’t go away and Sam’s mum, Lee, knew something more serious was going on. Sam was later diagnosed with juvenile dermatomyositis (JDM) and referred to Great Ormond Street

Read more

Living with spina bifida

Eight-year-old Jude was born with spina bifida, a birth defect where the spinal cord and surrounding vertebrae haven’t formed properly, causing a gap in the spine. His mum, Nadine, tells us about her experience.

Read more

Catheterisation using a Mitrofanoff by David, 25

David has various urological conditions and had a major operation to fit a Mitrofanoff catheter when he was eight years old. Now in his twenties, he shares his experience of his time at Great Ormond Street Hospital (GOSH).

Read more

Getting ready to move to adult services by Alice, 19

Alice, 16, shares her thoughts about moving to adult services and the treatment she'll receive in the future.

Read more

Getting ready to move to adult services by Jack, 16

Jack has been coming to Great Ormond Street Hospital (GOSH) for about a year. He's already spoken to his clinical nurse specialist about moving to adult services and what it involves.

Read more