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Helping your teenager through transition from GOSH to adult neuromuscular services

Transition is a planned process. It aims to:
  • support teenagers in the development of skills to become more independent in their healthcare
  • support parents in helping their teenager to achieve this to the best of their ability and
  • prepare for transfer from child-centred healthcare to adult healthcare services. 
This page from Great Ormond Street Hospital (GOSH) offers you some suggestions about how you might help your teenager to move through transition.

Spinal surgery at GOSH

At Great Ormond Street Hospital (GOSH), we have developed a pathway for children and young people having spinal surgery. Spinal surgery is a complex procedure, so we want you to understand the benefits and risks of the operation so you can make an informed decision about whether to go ahead. This page explains what will happen from your child’s initial clinic appointment through to discharge, which clinicians you may meet and what to expect.

Idiopathic scoliosis and spinal surgery

This page from Great Ormond Street Hospital (GOSH) explains the causes and symptoms of idiopathic scoliosis (curvature of the spine from an unknown cause). Surgery to correct the curvature is the main form of treatment offered at GOSH, so this pack gives details of the assessment process to help decide if spinal surgery is right for your child. It also tells you what to expect when your child comes to GOSH.

Generalised lymphatic anomaly (GLA)

Generalised lymphatic anomaly (GLA) – previously known as lymphangiomatosis – is the name given to a rare, congenital (present at birth), and progressive disorder of lymphatic channels which can affect different organs including the bones and the intestines. It can cause problems if the abnormal lymphatic tissue develops within important tissues and structures. This information sheet from Great Ormond Street Hospital (GOSH) explains the causes, symptoms and treatment of generalised lymphatic anomalies (GLA) and where to get help. 

Osteogenesis imperfecta 

Osteogenesis Imperfecta (OI) is a genetic condition present from birth. Its primary feature is fractures usually caused by minimal impact. This information sheet from Great Ormond Street Hospital (GOSH) describes osteogenesis imperfecta (OI), what causes it and how it can be managed. It also tells you about the highly specialised service for OI based at GOSH.

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