This information sheet explains the various tests your child will need to prepare for a bone marrow transplant (BMT). It also explains a little about what to expect when your child comes to Great Ormond Street Hospital (GOSH) for these tests and introduces you to the members of the BMT team.
This page from Great Ormond Street Hospital (GOSH) explains about cyanotic spells that occur when a baby has a congenital (present at birth) heart condition called tetralogy of Fallot. It also explains what action to take if a child has a cyanotic spell.
The purpose of this guideline is to provide guidance on the care and use of long term Central Venous Access Devices (CVAD) including advice on dealing with any problems encountered. For the purpose of this guideline, devices that are required to remain insitu greater than a month will be considered a long term CVAD.
Note: While this guideline refers to the 'child' throughout, all activities are applicable to young people
The SEND Information Report is designed to give information about our school and the way in which we support children/young people with a wide range of Special Educational Needs/ Disabilities (SEND), in all aspects of school life.
Worster-Drought syndrome (WDS) is a type of cerebral palsy (movement disorder) that affects the muscles around the mouth and throat. This causes problems with swallowing, feeding, talking, dribbling and other actions controlled by these muscles, such as coughing, nose-blowing, kissing and crying.
Warfarin is an anticoagulant medication (known as a ‘blood thinner’) that will slow down blood clotting to prevent abnormal blood clots from developing or worsening. This page from Great Ormond Street Hospital (GOSH) explains about the anticoagulant (blood thinner) medication warfarin, how it should be taken and how it will be monitored.
A gastrostomy is a feeding tube that is inserted directly into the stomach either surgically under direct vision (open or laproscopic), endoscopically (with a camera), or radiologically (x-ray guidance). A gastrostomy tube allows the delivery of supplemental nutrition and medications directly into the stomach. It also provides a mechanism to drain gastric contents if required. In order for gastrostomy feeding to be successful the child or young person must have a functioning gastrointestinal tract.
The ketogenic diet (KD) is a therapeutic diet, which has been shown to improve seizure control in patients with drug resistant epilepsy, and is used in some patients with metabolic conditions for example, glucose transporter type 1 deficiency syndrome (GLUT1) and pyruvate dehydrogenase deficiency (PDH).
NOTE: We review our guidelines regularly and this guideline is now past its review date. The content of the guideline below may not reflect the most recent evidence based practice. Please use with caution.
The plastics physiotherapist at Great Ormond Street Hospital (GOSH) sees children with a wide range of problems. Some of these problems are present at birth (congenital) and some may have developed in childhood. Children who need plastic or reconstructive surgery are seen as outpatients, day case patients or inpatients. Children and young people need to be referred to physiotherapy by the plastics medical team before they are reviewed.
Enteral feeding is a very useful method of ensuring adequate intake of fluid and nutrients in patients who, for a variety of reasons, are unable to use the oral route, or are unable to take sufficient nutrients to maintain growth and development.
The Occupational Therapy team provide input into the Neurodisability clinics at Great Ormond Street Hospital (GOSH), working collaboratively as part of the multidisciplinary team. The occupational therapist will discuss your child’s current functional skills and assess their ability to carry out age appropriate self-care and school based tasks. Following the assessment, advice to support your child’s occupational performance is offered to local services to ensure continuity of care.