We strongly encourage the involvement of patients, their families and carers, as well as the public in research.We believe patient and public involvement/engagement (PPI/E) makes our research more relevant, and can lead to treatments that better meet the needs of patients.
This page is aimed at researchers at Great Ormond Street Hospital (GOSH) or the UCL Great Ormond Street Institute of Child Health (ICH). If you are a patient or member of the public you can visit our dedicated PPI/E page.
For more information please see our BRC and CRF PPIE strategy 2018-2022 (503.15 KB)
Patient and Public Involvement (PPI) support for researchers
Through the work of National Institute for Health Research (NIHR) GOSH Biomedical Research Centre (BRC), we provide PPI support and advice to researchers including:
• One-to-one advice on involving patients and the public in your research and assistance with PPI in grant applications
• PPI Training events for researchers to build up your skills in involving lay people in the research process. In collaboration with the NIHR University College London Hospitals (UCLH) Biomedical Research Centre we have organised a series of training workshops which are open to GOSH UCL Great Ormond Street Institute of Child Health (ICH) staff. The workshops are practical and aim to build up researchers’ skills in effectively involving lay people in the research process, from setting research priorities to designing protocols. Courses are free to attend. More information
• Researchers can attend our two existing research advisory groups or ask them for virtual feedback on research (e.g.patient information sheets, lay summaries etc). The groups are facilitated by the PPI/E Lead at GOSH/ICH.
Young Person's Advisory Group (YPAG)
YPAG is part of a national initiative to involve young people in improving health research called GenerationR.
Our London group consists of young people, between 8-21 years old, who are interested in medicine, research and science. Some have health conditions and have experience of participating in clinical trials. The group meets six times a year to advise researchers on their work. Researchers who are planning to undertake health research with children and young people can visit YPAG to get input and advice on any element of their project.
Parent/Carer Research Advisory Group
Child health researchers looking for patient and public involvement can consult with our Parent/Carer Research Advisory Group to get support with their project. This could include advice on: the research idea, study design, developing accessible information sheets and dissemination. Consultation can take place either by visiting the group and/or remotely via email.
Patient/Public Engagement (PPE) in Research
We are committed to raising awareness and keeping patients and the public informed about research at GOSH. We achieve this through our engagement programme that encourages conversations between patients, the public, staff and our researchers. We run a diverse programme of events and activities including an annual GOSH BRC Family Fun Day in the Autumn as well as activities to mark Rare Disease Day (February) and International Clinical Trials Day (May). Get in touch if you would like to showcase your research at these events.
Ethics guidance on patient and public involvement in research has been published in a joint statement between the Health Research Authority and INVOLVE
Guidance on how to provide feedback to public contributors to research.
Get in touch
Contact our PPI lead for research at GOSH and ICH: firstname.lastname@example.org