NIHR GOSH BRC Patient and Public Involvement and Engagement call

A scientist interacts with young people at the BRC Family Fun Day 2017

Open to all staff!

All staff at GOSH and the UCL Great Ormond Street Institute of Child Health (ICH) are invited to apply for the NIHR GOSH Biomedical Research Centre (BRC) Patient Public Involvement/Engagement (PPI/E) Small Grants Scheme. Funding is available to support a range of projects that will enable patients and the public to shape or become better informed about research at GOSH. The scheme is specifically aimed at supporting researchers to actively involve and/or engage patients and the public in translational research aligning with the activity of existing GOSH BRC Research Themes.

Why is it important?

High quality research depends on listening to the voices of children and young people, as well as their families and carers, taking account of their experiences, priorities and perspectives. This process of joint working is vital to how we design and carry out our research. The NIHR GOSH BRC is offering this funding as part of its commitment to patient and public involvement/engagement in research.

Who can apply?

All staff from GOSH or ICH and any patients, parents and carers are welcome to apply. You may be a nurse, AHP, doctor, PhD student, administrator or researcher: any member of staff; clinical or non-clinical. If you have a good idea on how to involve or engage patients and the public in research and would like some funding to support this, please apply.

How much money is available?

The NIHR GOSH BRC has £5,000 in funding to be split across a number of applications. There is no maximum limit for each application, but it is unlikely a single project will receive the entire £5,000 budget. Successful applicants will need to ensure they can spend the funds by 19th March 2021 but these could be spent to support an activity that happens after this date (e.g. payments to support a meeting in May 2021 would need to be made by 19th March 2021).

Application process

  • Read the Guidance Notes (1 MB) for more on eligibility criteria and the scope of the call.
  • Please complete this short Application Form (43.11 KB) and submit to
  • Application deadline: Friday 26th June 2020 (midnight)
  • Winners announced: Friday 24th July 2020

Contact details 

  • Submit applications to:
  • For queries regarding your application contact the Patient and Public Involvement/Engagement Lead for research, Deirdre Leyden at:

We are delighted to announce the previous grant awardees below:

These projects will progress their work from 2018, with impact and learning shared by March 2021.

NameRoleProject titleAward total
James EvansAHPA mixed methods study exploring child and parent perceptions of nutrition support and nutritional outcomes, in paediatric BMT£400

Kate Fifield, Ellie Kerry and Maya Patel

Research Associates

The Launch of The Lucy Booth: A Drop-in Centre for Mental Health and Psychological Wellbeing

Emily Robinson and Elizabeth Rosser

Research Coordinator and Research Fellow

Patient engagement event: “I am what I eat: the science of food and poo”£800
Alpha Umaru BarrieNurseA mixed method exploration of parents’ and children’s experiences with subcutaneous injections of monoclonal antibodies as management for haemophilia£500
Polly LivermoreNurseJuvenile Dermatomyositis Family Day for the South East of England£600
June HemsleyNurseA half day one-off focus group meeting engaging patients, parent carers , and health professionals to help inform the development of a research grant proposal exploring breathlessness in children and young people receiving palliative care£800

Elaine Cloutman-Green, Nicola Baldwin, Amy Sutton, Fionnuala Wilkins and Laura Walsh
Chugh, Lucy Pepper

Healthcare ScientistStories from Neverland£2,200
Katy Pike and Joanne MilesDoctor and NurseChildren’s and parents’ perspectives on the use of remote monitoring in paediatric asthma management£6,820
NameRoleProject titleAward total
Robert NashConsultantChild and parental views of options available for hearing loss in unilateral microtia£2,000

Graeme O'Connor, Lucy Pepper, Hortensia Gimeno, Lucy Alderson, Gillian Waite

AHP Research Facilitator Group

Parents views on AHP care delivery in an intensive care setting

Dr Stephen D Marks, Dr Ji Soo Kim

Consultat, Registrar

Designing child, young person and family friendly research materials for studying psychosocial barriers to kidney transplantation in children£523
Ms Deepti ChughPhysiotherapistPPI activities to explore child, parent and physiotherapist perceptions of physiotherapy rehabilitation after Selective Dorsal Rhizotomy in children with cerebral palsy£400
Ella FieldResearch NursePPI E focus group to identify research priorities for children and families affected by arrhythmogenic cardiomyopathy£850
Dr Kristina SoonPrincipal Clinical PsychologistRare Disease Cohorts: Patients with Dystrophic and Junctional Epidermolysis Bullosa and Chronic Granulomatous Disease will be part of the target population£670

Dr Hortensia Gimeno, Dr Lucy Alderson, Gill Waite, Deepti
Chugh, Lucy Pepper

AHP Research FacilitatorsExploring family and children’s views of acute rehabilitation provision at a tertiary hospital£417
Dr Jane GilmourConsultant Clinical Psychologist (GOSH) and Snr Teaching Fellow
Telling it, like it iS
Adolescents with Tourette’s’ Syndrome informing peers about research in the National Specialist Tourette’s Syndrome Clinic (NSTSC), GOSH
Dr Claire SmithLecturer & Lead of GOSICH EDI Community Focus GroupThe GOSICH Future Researchers Christmas Lecture£500
Dr Samantha Chan, Dr Amy McTagueUCL Chadburn lecturer/ ST7 in Paediatric Neurology
GOSH BRC Catalyst Fellow/Honorary Consultant in Paediatric Neurology
Epilepsy – Carers Uniting with REsearchers (E-CURE)£400
Dr Natasha SchoelerResearch DieticianAssessing patient/carer experience within the GOSH Ketogenic Diet Neurology service£1,200
Dr Ameenat Lola SoleboNIHR Clinician Scientist, Honorary Consultant OphthalmologistShow, don’t tell! Using animation to engage children and young people in research£1,167
Dr Nandaki KeshavanClinical Research Training FellowPyruvate Dehydrogenase Complex (PDC) Deficiency Natural History Study£800
Dr Gwyneth DaviesNIHR Clinical Trials Fellow / Clinical lecturerIntegrating data-driven approaches into display and interpretation of clinical data for children and young people with Cystic Fibrosis at GOSH: perspectives on the ‘what, when and how’£830
NameRoleProject titleAward total
Kathryn FordRegistrarCharting Hurdles in Anorectal Malformations: a PPIE focus group event to identify what matters£995

Gemma Knight

Speech & Language Therapist

Perspectives of parents and CYP on the research priorities for children with cochlear implants

Abraham Cherian

Consultant Urologist

'Cloaca family' open day and research forum£1,500
Nicola BurnettPhysioEvaluation and development of the new neuromuscular clinical and physiotherapy provision for non-ambulant boys and your men with Duchenne Muscular Dystrophy£550
Rhiannon HalfpennySpeech & Language TherapistThe feasibility of using swallowing exercises in adolescents with swallowing impairments: A co-design project£459
Lucy PepperSenior Research FacilitatorIdentifying the views and priorities of parents whose children have very early developmental skills and attend Neurodisability clinics at GOSH for assessment£723

Claudio Capelli

Senior Research AssociateParticipated design of a virtual reality app to benefit patients with cardiovascular disease£500

CLOSED: GOSH BRC is inviting researchers to apply for funds to help embed high quality Patient and Public Involvement and Engagement in their research.

Internal GOSH and ICH applicants only.