CLOSED: GOSH BRC is inviting researchers to apply for funds to help embed high quality Patient and Public Involvement and Engagement in their research.
Internal GOSH and ICH applicants only.
OPEN TO ALL STAFF!
All staff at GOSH and the UCL Great Ormond Street Institute of Child Health (ICH) are invited to apply for the NIHR GOSH Biomedical Research Centre (BRC) Patient Public Involvement/Engagement (PPI/E) Small Grants Scheme. Funding is available to support a range of projects that will enable patients and the public to shape or become better informed about research at GOSH. The scheme is specifically aimed at supporting researchers to actively involve and/or engage patients and the public in translational research aligning with the activity of existing GOSH BRC Research Themes.
Why is it important?
High quality research depends on listening to the voices of children and young people, as well as their families and carers, taking account of their experiences, priorities and perspectives. This process of joint working is vital to how we design and carry out our research. The NIHR GOSH BRC is offering this funding as part of its commitment to patient and public involvement/engagement in research.
Who can apply?
How much money is available?
- Read the Guidance Notes (1 MB) for more on eligibility criteria and the scope of the call.
- Please complete this short Application Form (43.11 KB) and submit to BRC@gosh.nhs.uk
- Application deadline: Friday 26th June 2020 (midnight)
- Winners announced: Friday 24th July 2020
- Submit applications to: BRC@gosh.nhs.uk
- For queries regarding your application contact the Patient and Public Involvement/Engagement Lead for research, Deirdre Leyden at: firstname.lastname@example.org
|Name||Role||Project title||Award total|
|Robert Nash||Consultant||Child and parental views of options available for hearing loss in unilateral microtia||£2,000|
Graeme O'Connor, Lucy Pepper, Hortensia Gimeno, Lucy Alderson, Gillian Waite
AHP Research Facilitator Group
Parents views on AHP care delivery in an intensive care setting
Dr Stephen D Marks, Dr Ji Soo Kim
|Designing child, young person and family friendly research materials for studying psychosocial barriers to kidney transplantation in children||£523|
|Ms Deepti Chugh||Physiotherapist||PPI activities to explore child, parent and physiotherapist perceptions of physiotherapy rehabilitation after Selective Dorsal Rhizotomy in children with cerebral palsy||£400|
|Ella Field||Research Nurse||PPI E focus group to identify research priorities for children and families affected by arrhythmogenic cardiomyopathy||£850|
|Dr Kristina Soon||Principal Clinical Psychologist||Rare Disease Cohorts: Patients with Dystrophic and Junctional Epidermolysis Bullosa and Chronic Granulomatous Disease will be part of the target population||£670|
Dr Hortensia Gimeno, Dr Lucy Alderson, Gill Waite, Deepti
|AHP Research Facilitators||Exploring family and children’s views of acute rehabilitation provision at a tertiary hospital||£417|
|Dr Jane Gilmour||Consultant Clinical Psychologist (GOSH) and Snr Teaching Fellow
|Telling it, like it iS
Adolescents with Tourette’s’ Syndrome informing peers about research in the National Specialist Tourette’s Syndrome Clinic (NSTSC), GOSH
|Dr Claire Smith||Lecturer & Lead of GOSICH EDI Community Focus Group||The GOSICH Future Researchers Christmas Lecture||£500|
|Dr Samantha Chan, Dr Amy McTague||UCL Chadburn lecturer/ ST7 in Paediatric Neurology
GOSH BRC Catalyst Fellow/Honorary Consultant in Paediatric Neurology
|Epilepsy – Carers Uniting with REsearchers (E-CURE)||£400|
|Dr Natasha Schoeler||Research Dietician||Assessing patient/carer experience within the GOSH Ketogenic Diet Neurology service||£1,200|
|Dr Ameenat Lola Solebo||NIHR Clinician Scientist, Honorary Consultant Ophthalmologist||Show, don’t tell! Using animation to engage children and young people in research||£1,167|
|Dr Nandaki Keshavan||Clinical Research Training Fellow||Pyruvate Dehydrogenase Complex (PDC) Deficiency Natural History Study||£800|
|Dr Gwyneth Davies||NIHR Clinical Trials Fellow / Clinical lecturer||Integrating data-driven approaches into display and interpretation of clinical data for children and young people with Cystic Fibrosis at GOSH: perspectives on the ‘what, when and how’||£830|
|Name(s)||Role(s)||Project Title||Award Amount|
|James Evans||AHP||A mixed methods study exploring child and parent perceptions of nutrition support and nutritional outcomes, in paediatric BMT||£400|
|Kate Fifield, Ellie Kerry and Maya Patel||Research Associates||The Launch of The Lucy Booth: A Drop-in Centre for Mental Health and Psychological Wellbeing||£500|
|Emily Robinson and Elizabeth Rosser||Research Coordinator and Research Fellow||Patient engagement event: “I am what I eat: the science of food and poo”||£800|
|Alpha Umaru Barrie||
|A mixed method exploration of parents’ and children’s experiences with subcutaneous injections of monoclonal antibodies as management for haemophilia||£500|
|Polly Livermore||Nurse||Juvenile Dermatomyositis Family Day for the South East of England||£600|
|June Hemsley||Nurse||A half day one-off focus group meeting engaging patients, parent carers , and health professionals to help inform the development of a research grant proposal exploring breathlessness in children and young people receiving palliative care||£800|
|Elaine Cloutman-Green, Nicola Baldwin, Amy Sutton, Fionnuala Wilkins and Laura Walsh||Healthcare Scientist||Stories from Neverland||£2,200|
|Katy Pike and Joanne Miles||Doctor and Nurse||Children’s and parents’ perspectives on the use of remote monitoring in paediatric asthma management||£6,820|