2012 press release archive

2012 press releases from Great Ormond Street Hospital

Growing Up, gaining independence: information for families of young people with a learning disability

At Great Ormond Street Hospital we encourage and support young people to become as independent with their healthcare as they can be. Some people might always need someone else to help them manage their healthcare and to make health-related decisions for them. How these decisions are made and who can make them changes as people get older.

Gene therapy trials working group report

In 2019, given the growing number of gene therapy clinical trials at GOSH/ICH, we approached all the PIs involved in ongoing and upcoming clinical trials as well as PIs with relevant expertise to create a joint UCL/GOSH working group. The group met to discuss ongoing safety, emerging toxicity of AAV gene therapy trials, pathogenesis of adverse events, monitoring options and therapeutic options to manage these adverse events. The following documents are a record of the discussion and thoughts.