We are committed to providing better treatment and cures for children with complex and rare conditions around the world through research and innovation. In partnership with UCL Great Ormond Street Institute of Child Health (ICH), we form part of Europe’s largest academic centre for research and education in children’s health and disease. Join us as we look back at 10 years of innovation!
Meet 17-year-old patient Sandra, voice of our new Sample Bank animation! In this article, Sandra explains the importance of Sample Bank and her involvement with the Young Persons Advisory Group for research (YPAG).
At GOSH, we want research to be embedded in everything we do. That’s why we’ve launched the GOSH Sample Bank, where patients’ leftover samples can be used in child health research instead of being thrown away. This will allow us to carry out even more cutting-edge research, helping us better understand rare conditions and develop the treatments of the future.
Recently, young people and families went behind the scenes of research at GOSH at the annual Family Fun Day, hosted by the National Institute for Health Research (NIHR) Great Ormond Street Hospital (GOSH) Biomedical Research Centre (BRC).
Our brand new medical facility, the Zayed Centre for Research into Rare Disease in Children, brings together pioneering research and clinical care under one roof to drive forward new treatments and cures for seriously ill children, both across the UK and internationally. One of the first patients to be treated at the Centre is Kai, aged 10.
NHS patients who have taken part in clinical trials have expressed their gratitude to researchers in a film celebrating the work of the National Institute for Health Research (NIHR) Biomedical Research Centres (BRCs), including GOSH BRC, to mark the retirement of outgoing Chief Medical Officer Professor Dame Sally Davies.
Rue, 17, has Neuromyelitis Optica, a rare autoimmune condition affecting 1 in 5 million people. It can be characterised by relapses (attacks) of the optic nerve and spinal cord, which can cause vision problems and sight loss. Rue is taking part in a clinical trial to see whether a new drug can help reduce relapses that occur in her vision. Here she shares her story:
Meet physiotherapist Lesley Katchburian who cares for Cora in episode four of Paul O’Grady’s Little Heroes. Lesley, who is Lead Clinical Specialist Physiotherapist for Botulinum Toxin Services in Neurodisability at GOSH, explains why botulinum toxin can be helpful for children with cerebral palsy and why research is so important.