https://www.gosh.nhs.uk/wards-and-departments/departments/clinical-specialties/endocrinology-information/conditions-we-treat/congenital-hyperinsulinism-chi/hyperinsulinism-real-stories/

Hyperinsulinism real stories

Three parents talk about when their children were diagnosed with hyperinsulinism and the treatment they've received at Great Ormond Street Hospital.

  • Ellie's story

    Ellie was diagnosed with hyperinsulinism shortly after birth. Her dad, Trevor, talks about their experience.

  • Edison's story

    Just a few days after he was born, Edison became limp and unresponsive. His mum and dad feared the worse but a diagnosis of hyperinsulinism (HI) led to life saving treatment at Great Ormond Street Hospital (GOSH). Mum, Lucy, tells their story.

  • Charlie's story

    Charlie was diagnosed with congenital hyperinsulinism at Great Ormond Street Hospital (GOSH). Here, his family describe their journey in a picture video.

  • Kush's story

    Meet Bina and Mitesh, and their son Kush, who has hyperinsulinism. Learn first-hand about their experiences of hyperinsulinism as a family, and how they've learnt to adapt to the condition all together. Watch their video here.