Osteogenesis imperfecta and physical education and exercise

Participation in sports and exercise is recommended for children and young people with osteogenesis imperfecta (OI) to promote general fitness, muscle strengthening and bones becoming stronger.

Playing sports and exercising can be daunting due to the risk of fracture. However, there are many activities that children and young people with OI can participate in safely.

We always advise that the school, parents and young person meet at the beginning of the school term to discuss the PE curriculum. Together you can determine which activities are appropriate and which may need to be modified.

Please seek advice from your physiotherapy and specialist medical teams if needed.

Higher risk activities we do not recommend when you have OI:

  • contact sports which involve tackles and unpredictable collisions or falls (for example, rugby, basketball, judo, football)

  • trampolining

  • certain gymnastic moves such as forward rolls, backward rolls, handstands and cartwheels

  • jumping down from heights, for example, off gym apparatus and climbing frames

  • horse-riding (this causes repetitive impact though the spine and should be carried out with caution – please discuss with your medical team before taking part)

Recommendations

  • Swimming is a non-contact activity and an excellent way to improve fitness and muscle strength.

  • Dance is a safe activity to participate in, but repetitive high impact and break-dancing moves should be avoided. Dancing with a partner can be unpredictable; tugging and pulling should be minimised. Holding onto a rope rather than hand-holding will enable children with OI to let go if their partner is pulling too firmly on their arms.

  • Racket sports such as tennis, badminton and table tennis are recommended. Some children/young people may need a lighter racket or use a softer ball and should be encouraged to hit the ball holding the racket with two hands.

  • Children/young people should be allowed to participate in the training skills of contact sports. For example, dribbling or bouncing the ball, shooting practice, throwing and catching. Children may prefer using a lighter or softer, spongier ball.

  • Gym sessions should be supervised. Children/young people may need lightweight apparatus and be shown how to climb on/off equipment safely. Some activities can be carried out at floor level, for example, walking along a line on the floor instead of walking along beams/benches.

  • Wearing a bright or different coloured T-shirt/top may make children/young people more visible and help avoid collisions.

  • Children/young people with OI often have hypermobile (very flexible) joints. This means they may be more prone to sprains and may have weakness around their joints - wearing supportive shoes and trainers rather than plimsolls are recommended when exercising.

  • Many sports and games can be adapted for wheelchair users – please contact your physiotherapist or OT for details.

Children/young people with OI can get more tired and experience more aches and pains compared to their peers – having rest breaks during activities and not over-doing things will help to manage this.

These are just some ideas on how to promote participation in PE and sports in children/young people with OI. However every child/young person is different and strategies can be put in place to facilitate participating in specific activities/sports. If you are unsure of what activities a child/young person with OI should join in with, or wish to discuss a specific activity, please contact us.

Compiled by: 
The Great Ormond Street Hospital OI therapy team in collaboration with the Child and Family Information Group.
Last review date: 
June 2016
Ref: 
2016F1477

Disclaimer

Please note this is a generic GOSH information sheet. If you have specific questions about how this relates to your child, please ask your doctor. Please note this information may not necessarily reflect treatment at other hospitals.