Wolff-Parkinson-White syndrome by Sophie, 16

Read Sophie's real story to find out more about Wolff-Parkinson-White syndrome being treated at Great Ormond Street Hospital (GOSH).

“I was first taken into Great Ormond Street Hospital when I was a baby. I was kept in for about a month on machines and having tests before being diagnosed with Wolff-Parkinson-White syndrome and a hole in my heart.

“Growing up, I have found it difficult because I have not been able to do the normal things that teenagers do, for example fair rides, but my friends are really understanding and always look out for me which is great!"

Not a normal hospital

“Coming to GOSH doesn’t feel like a normal hospital visit, it’s much more relaxed and the people are amazing! I never worry about going into GOSH even if I’m having an operation because the team are amazing and the nurses are like family.

“My condition makes my heart go into something called an SVT attack; I had an operation to remove an extra pathway in my heart when I was 10 which worked! :)"

Funny rhythm

“I am now 16 and still back to GOSH as they suspect I have another condition now which they are investigating, my condition makes me extremely tired and makes my heart go over 300bpm and does what I call ‘skipping beats’ or has a funny rhythm. However it doesn’t stop me being a huge lover of horse-riding and having my own horse which is a lot of exercise but I’m finding it fine!

“I’m really looking forward to when I am discharged completely from GOSH although I’m going to miss some of my nurses and definitely my surgeon as they have become like part of my family."

Don’t worry

“For anyone coming into GOSH for the first time I would definitely recommend you to always think positive and have a smile on your face and don’t worry! Because you will be in great hands at GOSH and be in the company of some of the most amazing, lovely, thoughtful people in the world!"

This story may have been edited for editorial and confidentiality reasons only.