On Tuesday 14 July 2015, the BBC returns to Great Ormond Street Hospital (GOSH) for a third documentary series. Follow our young patients and their specialists as they undergo treatment for their rare diseases, respiratory disorders and neurological conditions.
Your doctor would like you to have some treatment to help keep you healthy. It is called immunoglobulin (pronounced ‘imm-you-no-glob-you-lin’). This leaflet will help you to understand a bit more about this treatment. It has been produced by PID UK in conjunction with Great Ormond Street Hospital and the Great North Children’s Hospital.
An implantable loop recorder is a small device implanted under the skin on your chest that records the electrical signal from your heart. This page explains about the implantable loop recorder, why you might need one and how it is inserted. It also explains what to expect when you go home.
A patient story is a description of an experience of healthcare given by the person (or their representative) experiencing it. They tell the story in their own words – often helped by a formal or informal interview process. Stories have a beginning, middle and end and have characters – they are about people and how they interact with the processes of healthcare.
Laura gained a first class degree in Psychology in 2012. She joined GOSH in 2013 as a Cleft Clinic Information and Database Coordinator, where she was solely responsible for the organisation of the audit and data collection programme and maintenance of the Cleft Registry and Audit Network (CRANE...
As well as managing information, Beki leads on equality and diversity issues affecting children, young people and families and the development of pathway and consent documentation. She is a member of the Patient Information Forum and the Pan-London NHS Equality and Diversity Leads Network.
Emma is the Patient Involvement and Engagement Officer at GOSH. She strives to ensure that children, young people and their families have a voice in the planning and delivery of care and services at GOSH.
Suzanne has worked within a variety of departments within Great Ormond Street Hospital, including the Renal Unit, as the Clinical Data Lead for GOSH Nephrology & Urology Departments, British Association of Paediatric Nephrology (BAPN) and the UK and Ireland Cystinosis Registry. Within the...
What you and your child experience when you come to Great Ormond Street Hospital (GOSH) matters to us. We want to provide the best experience possible during what we realise must be a difficult time in your lives.
Factor XIII deficiency is a type of clotting disorder. A specific protein is missing from the blood so that injured blood vessels cannot heal in the usual way. This information sheet from Great Ormond Street Hospital (GOSH) explains the causes, symptoms and treatment of Factor XIII deficiency and where to get help.