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When a child dies

This guideline is intended to supplement the resources found in the 'When a Child Dies' (WACD) purple box located in every ward, which gives detailed information on the care of a child after death and, additionally, the ongoing care and attention that the child's family will require (Rationale 1).

Neuromyelitis optica spectrum disorder

Neuromyelitis optica spectrum disorder (NMOSD) is a rare neurological (brain) condition characterised by episodes of optic neuritis (inflammation or swelling of the optic nerve), transverse myelitis (inflammation or swelling of the spinal cord), together with one or more other diagnostic criteria including in some cases the presence of a specific antibody (AQP4).This information sheet from Great Ormond Street Hospital (GOSH) explains the causes, symptoms and treatment of neuromyelitis optica spectrum disorder (NMOSD) and where to get help.

The Decision to Withdraw or Withhold Life-Sustaining Treatment for Children and Young People in Intensive Care Units: Guidance for Nurses

The decision to withdraw or withhold life-sustaining treatment in paediatric and neonatal intensive care units (ICUs) is both complex and emotive for everyone involved. All members of the treating healthcare team, lead by the consultant in charge, should be involved in the decision-making process.This guideline is intended to be used by nurses when situations arise where it may be ethical and legal to consider withholding or withdrawing life-sustaining medical treatment.

Alison Salt

Dr Alison Salt is an expert in paediatric neurodisability. She has worked at Great Ormond Street Hospital for 14 years and is also Consultant Paediatrician at Moorfields Eye Hospital and Senior Lecturer, Institute of Child Health, UCL. 

Naomi Dale

Dr Naomi Dale is a consultant clinical psychologist and an expert in paediatric neurodisability. She has worked at Great Ormond Street Hospital for 18 years and she is also Senior Lecturer, UCL Institute of Child Health. 

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