This guideline is intended to supplement the resources found in the 'When a Child Dies' (WACD) purple box located in every ward, which gives detailed information on the care of a child after death and, additionally, the ongoing care and attention that the child's family will require (Rationale 1).
We want every child and young person to have the best experience possible when visiting or staying at Great Ormond Street Hospital (GOSH). We will always try to make ‘reasonable adjustments’ for children and young people with additional needs – for example, considering a child’s needs when allocating single cubicles, finalising theatre list order or planning outpatient appointments.
This guideline is intended to guide and facilitate the care of patients under the care of the clinical teams at Great Ormond Street Hospital for Children NHS Trust (GOSH). It has been approved by the Guideline Approval Group and is for use by staff of all disciplines and levels in these health care teams. The guidance contained here in is not intended to replace individual assessment and personalised treatment of the patient.
The possibility of using animal parts to overcome human organ shortages moves one step closer following the successful transplant of rabbit skeletal muscle tissue into rats, by a team led by the UCL Institute of Child Health.
NOTE: We review our guidelines regularly and this guideline is now past its review date. The content of the guideline below may not reflect the most recent evidence-based practice. Please use with caution.
Worster-Drought syndrome (WDS) is a type of cerebral palsy (movement disorder) that affects the muscles around the mouth and throat. This causes problems with swallowing, feeding, talking, dribbling and other actions controlled by these muscles, such as coughing, nose-blowing, kissing and crying.
Dr Naomi Dale is a consultant clinical psychologist and an expert in paediatric neurodisability. She has worked at Great Ormond Street Hospital for 18 years and she is also Senior Lecturer, UCL Institute of Child Health.
Erythropoiesis stimulating agent (ESA) medicines are man-made versions of erythropoietin, which is a hormone (chemical messenger) produced naturally by the kidneys. The role of erythropoietin is to stimulate the bone marrow to produce more red blood cells.