At the Listening event in 2013, our patients, families and staff asked us to develop a shared commitment and values to help make people’s experience at GOSH more consistently great. So, in spring 2014 we undertook a listening exercise to understand the values.
We want the experience of GOSH to be the best it can for everyone. At the Listening event in 2013, our patients, families and staff asked us to develop a shared commitment and values to help make people’s experience at GOSH more consistently great.
The proposal writing consultancy service offers support from concept to final grant submission, including assistance in structuring and targeting the scientific section, the expected impacts section, writing the implementation, management and finance sections, and aiding in partner search.
Our purpose built, dedicated children’s facility is located on Level one of the Frontage building in Great Ormond Street Hospital (GOSH). It provides a welcoming, safe and appropriate environment for children, young people and their families taking part in research studies/clinical trials.
As part of the Cardiorespiratory Clinical Unit, we are a Nationalised Commissioning Service awarded our status by the Nationalised Commissioning Group (NCG) for highly specialised services in extra corporeal membrane oxygenation (ECMO) and mechanical heart support.
Great Ormond Street Hospital NHS Foundation Trust (GOSH) confirms Epic Systems Corporation as preferred supplier for its electronic patient record (EPR) system and Aridhia Informatics Limited as preferred supplier for the research and innovation platform.
The clinical team at GOSH works closely with the research department at the Behavioural and Brain Sciences Unit (BBSU) at UCL Great Ormond Street Institute of Child Health (ICH). We collaborate with colleagues around the world to try and understand the genetic, psychological and neurophysiological basis of disorders on the autism spectrum. All information we obtain in terms of interview, observation and other investigations is compiled into anonymised computerised files. From our database of nearly 2000 children, we are able to compare a child’s problems with others seen in our clinic and can look for similarities and differences. For research purposes, we usually ask parents to donate DNA samples too.
Our current research and development projects include the following:
A project to identify the main problem areas and issues related to feeding difficulties in children most relevant to include in parent/carer groups
Development and evaluation of a tube weaning protocol
Collaboration in a study designed to test how good the DAWBA (Development and Well-Being Assessment) is at identifying problems in children in the community and children seen in clinics (with Prof Tamsin Ford and Prof Robert Goodman)
Design and development of a clinical assessment measure for Avoidant Restrictive Food Intake Disorder (with Kamryn Eddy and Jennifer Thomas, Boston, USA)
Our aim is for patients, their families/carers, and members of the public to be actively involved in our research at all stages. We believe that Patient and Public Involvement (PPI) helps make sure research reflects the needs and views of the public and is more likely to produce results that can be used to improve health care.