Tracy and her husband feared the worst when their baby son was diagnosed with severe haemophilia. But thanks to new and better treatments they've learned that Ben can look forward to a bright future. Here Tracy tells their story.
Squirrel Ward is for babies, children and young people having general surgery. We treat congential (present at birth) conditions as well as conditions of the gastrosintestinal system, diagphragm and abdominal wall.
This clinical guideline from Great Ormond Street Hospital (GOSH) discusses nutritional requirements for preterm infants receiving enteral nutrition. It does not give guidance on the prescription of parenteral nutrition (PN).
Azathioprine is known as an immunosuppressant medicine. It is used at Great Ormond Street Hospital (GOSH) to treat certain types of chronic inflammatory conditions like systemic lupus erythematosus (SLE), vasculitis, eczema and Crohn’s disease.
This information from Great Ormond Street Hospital (GOSH) is for parents of children and young people undergoing assessment for possible lung or heart-lung transplantation. A transplant is a serious operation and is not without risk. A transplant can be the only effective treatment option for certain serious lung diseases; however, it is not a cure. In many situations transplantation can lead to an extension of life with improved quality.
Haemophilia affects your body’s ability to control blood clotting, which is what is used to stop bleeding. It’s an inherited bleeding disorder, so if you have haemophilia it’s likely one of your relatives will have it as well.
This booklet has been produced jointly between PID UK, Great Ormond Street Hospital (GOSH) and the Great North Children’s Hospital. The information has been reviewed by the PID UK Medical Advisory Panel and Patient Representative Panel and by families affected by PID. It is designed to help answer the questions families may have about the immune condition called severe combined immunodeficiency (SCID) but should not replace advice from a clinical immunologist.