The ketogenic diet (KD) is a therapeutic diet, which has been shown to improve seizure control in patients with drug resistant epilepsy, and is used in some patients with metabolic conditions for example, glucose transporter type 1 deficiency syndrome (GLUT1) and pyruvate dehydrogenase deficiency (PDH).
Immunoglobulin is also known as IgG or antibody. It is a blood product and is given often as replacement for people who are unable to make their own antibodies. This information sheet from Great Ormond Street Hospital (GOSH) explains what immunoglobulin is, why it is used in Neurology, how it is given and some of the possible side effects.
The Berlin Heart device is used in children whose hearts are no longer strong enough to pump enough blood around their bodies. There are many different types of conditions which can cause this need for support such as a weak heart muscle (cardiomyopathy) or an infected heart muscle (myocarditis).
This guideline is intended to supplement the resources found in the 'When a Child Dies' (WACD) purple box located in every ward, which gives detailed information on the care of a child after death and, additionally, the ongoing care and attention that the child's family will require (Rationale 1).
The most common reason why might the pulmonary valve need replacing in children and young adults is related to treatment of congenital heart disease. Pulmonary valve replacement is usually suggested when a child has symptoms of heart failure, such as tiredness on exercising.
This guideline is intended to guide and facilitate the care of patients under the care of the clinical teams at Great Ormond Street Hospital for Children NHS Trust (GOSH). It has been approved by the Guideline Approval Group and is for use by staff of all disciplines and levels in these health care teams. The guidance contained here in is not intended to replace individual assessment and personalised treatment of the patient.
A gastrostomy is a feeding tube that is inserted directly into the stomach either surgically under direct vision (open or laproscopic), endoscopically (with a camera), or radiologically (x-ray guidance). A gastrostomy tube allows the delivery of supplemental nutrition and medications directly into the stomach. It also provides a mechanism to drain gastric contents if required. In order for gastrostomy feeding to be successful the child or young person must have a functioning gastrointestinal tract.
This page from Great Ormond Street Hospital (GOSH) explains about cyanotic spells that occur when a baby has a congenital (present at birth) heart condition called tetralogy of Fallot. It also explains what action to take if your child has a cyanotic spell.
Videofluoroscopy takes place in the x-ray department of Great Ormond Street Hospital (GOSH) and is an evaluation of the swallowing process. A recording is made of the moving (dynamic) x-ray showing swallows of food and liquid.
Clinical outcomes are broadly agreed, measurable changes in health or quality of life that result from our care. Constant review of our clinical outcomes establishes standards against which to continuously improve all aspects of our practice.