The NIHR Great Ormond Street Biomedical Research Centre (BRC) has been awarded £37 million in funding to drive forward translational research into rare diseases in children. The Centre is the only one of its kind in the UK dedicated to paediatric research.
Two-year-old Cody was born with severely malformed blood vessels deep inside his brain. Left untreated this very rare condition known as a Vein of Galen malformation, can cause heart failure and problems with blood supply to the brain at any time. For Cody, the condition could have caused him to lose his speech and mobility.
Since May 2006, some nurses and pharmacists have been allowed to prescribe medicines that were previously only allowed to be prescribed by doctors. Non-medical prescribing has been introduced to improve patients’ access to treatment – that is, making it easier for you to get the medicines you need for your child. This page from Great Ormond Street Hospital (GOSH) explains about the process.
A colonoscopy is a test that allows the doctor to look at the colon for any abnormalities. This is to confirm or rule out a condition or diagnosis. A colonoscopy is the ‘gold standard’ way of assessing the gut.
This page from Great Ormond Street Hospital (GOSH) explains the Kelly procedure used to strengthen the sphincter at the bladder neck and what to expect when your child is admitted to GOSH for the operation.
The purpose of this guideline is to provide guidance of how to correctly carry out Train of Four (TOF) monitoring on a patient within the ICU environment taking into account nursing considerations and indications/contraindications for use.
This information from Great Ormond Street Hospital (GOSH) explains about the gastroscopy procedure, what it involves and what to expect when your child comes to GOSH for treatment. You may also hear the procedure called an oesophagogastroduodenoscopy or OGD.
Rituximab (brand name MabThera®) is a relatively new medicine which works on the immune system. It removes some of the white blood cells in the body which are called B cells. Removing these stops the production of antibodies that may play a role in your child’s illness.
A video capsule endoscopy is a test carried out at Great Ormond Street Hospital (GOSH) to look at the small intestine for any abnormalities. This is to confirm or rule out a condition or diagnosis. A capsule containing a tiny camera and light is inserted into the digestive system using an endoscope during a gastroscopy procedure.
A nasopharyngeal airway is a small, plastic tube that keeps your child’s nostrils open, allowing them to breathe more easily. This information sheet from Great Ormond Street Hospital (GOSH) explains about nasopharyngeal airways, why they might be needed for children with craniofacial conditions and how to look after them at home.