Shannon, 16, has just attended her school prom and been bridesmaid at her mum’s wedding. She has been coming to Great Ormond Street Hospital (GOSH) since she was a baby. Here’s her story about her more recent stays at GOSH being treated for cystic fibrosis (CF) related diabetes.
Cystic fibrosis related diabetes (CFRD) is different to other types of diabetes. CFRD is caused by the build up of thick secretions in the pancreas. These secretions damage the cells that produce a hormone called insulin.
New onset diabetes after transplant (NODAT) affects between three and 13 per cent of children and young people who have an organ transplant. The medicines needed to prevent the body rejecting the organ also affect insulin production and uptake.
The Department of Endocrinology and Diabetes at Great Ormond Street Hospital (GOSH), in partnership with adolescent and adult services at University College London Hospitals (UCLH), form the London Centre for Paediatric Endocrinology and Diabetes.
An experienced and accomplished healthcare leader, with a passion for child health and well-being, has been appointed the Deputy Chief Executive of Great Ormond Street Hospital for Children NHS Foundation Trust.
Healthcare associated infections (HCAI) are the most frequent adverse event during care delivery and are a global problem for patient safety. The prevention and management of the risk of HCAIs is an essential part of maintaining patient safety and fundamental in any healthcare setting (World Health Organisation (WHO), 2011).
The ketogenic diet (KD) is a therapeutic diet, which has been shown to improve seizure control in patients with drug resistant epilepsy, and is used in some patients with metabolic conditions for example, glucose transporter type 1 deficiency syndrome (GLUT1) and pyruvate dehydrogenase deficiency (PDH).
The purpose of this guideline is to support the safe and effective use of insulin at Great Ormond Street Hospital (GOSH). It follows the implementation of the National Patient Safety Agency (NPSA 2010) guidance “Safer Administration of Insulin” and supports best practice throughout the Trust.