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One-way (speaking) valves

This page from Great Ormond Street Hospital (GOSH) explains about one-way (speaking) valves, what they do and how to encourage your child to wear the valve. A one-way valve is a plastic attachment that fits on to the end of your child’s tracheostomy tube.

Suction

Suction is used to clear retained or excessive lower respiratory tract secretions in patients who are unable to do so effectively for themselves. This could be due to the presence of an artificial airway, such as an endotracheal or tracheostomy tube, or in patients who have a poor cough due to a variety of reasons such as excessive sedation or neurological involvement. 

Generalised severe junctional epidermolysis bullosa (EB)

This information sheet from Great Ormond Street Hospital (GOSH) explains about generalised severe junctional epidermolysis bullosa (previously called Herlitz junctional EB) and how it can be managed. It also contains suggestions for making everyday life more comfortable and contact details for further information and support. This information sheet explains about the generalised severe junctional form of EB. 

Nager syndrome

Nager syndrome is a congenital (present at birth) condition affecting the bones and tissues in the face. It also affects the arms and hands, and occasionally the legs and feet too. This information sheet from Great Ormond Street Hospital (GOSH) explains the causes, symptoms and treatment of Nager syndrome and where to get help.

Treacher-Collins syndrome

Treacher-Collins syndrome is a congenital (present at birth) condition affecting the bones and tissues in the face. This information sheet from Great Ormond Street Hospital (GOSH) explains the causes, symptoms and treatment of Treacher-Collins syndrome (also known as mandibulofacial dysostosis) and where to get help.