Mel and her son Charlie, age 7, were both diagnosed last year with CAPS (Cryopyrin-Associated Periodic Syndrome), a rare inherited and auto inflammatory disease. Here, Mel talks about the diagnosis and Charlie’s journey to Great Ormond Street Hospital.
Immunoglobulin is also known as IgG or antibody. It is a blood product and is given often as replacement for people who are unable to make their own antibodies. This information sheet from Great Ormond Street Hospital (GOSH) explains what immunoglobulin is, why it is used in Neurology, how it is given and some of the possible side effects.
Steroids are hormonal substances that are produced naturally in the body by the adrenal glands (which are just above each kidney) and by the reproductive organs. There are many different types of steroids and they have different effects on the body.
Methotrexate is a medicine that has been used to treat chronic inflammatory conditions such as juvenile idiopathic arthritis, juvenile dermatomyositis, systemic lupus erythematosus, vasculitis and severe psoriasis for many years.This information sheet from Great Ormond Street Hospital (GOSH) explains about the use of methotrexate in such conditions.
Children with cystic fibrosis (CF) may from time to time need an admission to Great Ormond Street Hospital (GOSH) and this may be for a variety of reasons. Usually the admission is discussed with the family and planned ahead of time but occasionally a more urgent admission may be required.
This guideline is intended to guide and facilitate the care of patients under the care of the clinical teams at Great Ormond Street Hospital for Children NHS Trust (GOSH). It has been approved by the Guideline Approval Group and is for use by staff of all disciplines and levels in these health care teams. The guidance contained here in is not intended to replace individual assessment and personalised treatment of the patient.
We all have medicines of some kind at home, some of which could be dangerous if taken incorrectly. Here Great Ormond Street Hospital (GOSH) explains how to keep your medicines safe at home. You'll also find tips for keeping a well-stocked but safe medicine cabinet.
The Children’s Hospital School Special Educational Needs and Disabilities (SEND) Information Report sets out in one place information about our school and the way in which we support children and young people with a wide range of special educational needs or disabilities.
Sirolimus (also known as rapamycin) is an immunosuppressant medicine used at Great Ormond Street Hospital (GOSH), which damps down the immune system. It is most commonly used following kidney transplant to prevent the new kidney being rejected by the body. However it is now being used for other medical conditions.