At Great Ormond Street Hospital (GOSH), we try to achieve the highest standards in our clinical care and also in the services we provide for children, young people and families. We want to exceed your expectations so we try to improve what we do and how we do it all the time.
This guideline is intended to supplement the resources found in the 'When a Child Dies' (WACD) purple box located in every ward, which gives detailed information on the care of a child after death and, additionally, the ongoing care and attention that the child's family will require (Rationale 1).
The Children’s Hospital School SEND Information Report sets out in one place information about our school and the way in which we support children and young people with a wide range of Special Educational Needs/Disabilities.
Physiotherapy is an essential part of the treatment for cystic fibrosis (CF) and should start as soon as the diagnosis of CF is confirmed. This page explains the type of physiotherapy treatment used for infants with CF at Great Ormond Street Hospital (GOSH). Further information is available online from the CF Trust website.
The purpose of this guideline is to provide guidance on the care and use of long term Central Venous Access Devices (CVAD) including advice on dealing with any problems encountered. For the purpose of this guideline, devices that are required to remain insitu greater than a month will be considered a long term CVAD.
Note: While this guideline refers to the 'child' throughout, all activities are applicable to young people
Within 15 minutes of the birth of their baby daughter, Isobel, Abigail and Shaun knew that something was wrong. Here, Abigail shares her story of how Isobel was diagnosed with cystic fibrosis and her hopes for the future.
The brain works by a series of nerve impulses, which cause electrical signals within the brain. These signals (also called brainwaves) can be recorded through the scalp using an electroencephalogram (EEG). The electrical signals also produce weak magnetic fields, which can be measured through the skull and scalp using a magnetoencephalogram (MEG) scan.
Mia was born with a rare abdominal wall defect called exomphalos. Her mum, Amy, talks about the first months of Mia's life spent at Great Ormond Street Hospital (GOSH) undergoing life-saving surgeries.
Bethan was born with microtia, a condition where an ear is too small or absent. Microtia is often paired with other conditions, in Bethan’s case hemifacial microsomia, which means there is underdevelopment in one side of the face, resulting in facial asymmetry.
The Ophthalmology team at Great Ormond Street Hospital (GOSH) helped develop the Royal College of Ophthalmologists' (RCOphth) overarching quality standards that describe five key aspects of the ophthalmic care and service for children and young people.
Daisy was born with severe gastro-intestinal issues and was later diagnosed with a rare genetic disorder known as Costello syndrome. Her mum, Stephanie, talks about how she learnt how to administer total parenteral nutrition (TPN) so Daisy can enjoy life at home.